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To me that just sounds like something that would stop you from getting better by impeding proper rest: "rehabilitation", but also lots of it as there are lots of "disciplines", so many draining and time/energy-consuming appointments. Is there any way to take on "multidisciplinary...

How would "interdisciplinary rehabilitation" stop people getting worse?

Does anyone know why on earth this is? :(

Sounds like a responsible way of dealing with the subject matter :facepalm:

We could do with someone to counteract the PG narrative in the UK - who are they? I hope this programme was helpful. I cannot investigate further myself at the moment.

I remember someone making this point in one of the letters responding to some of this pro-GET and CBT stuff we've been seeing lately in response to Long Covid - but I have not been able to locate a link. I thought the letter made the point well and was hopeful that this point could be emphasised...

I know this has been covered, but ??? Huh? :alien:

Great idea; any chance of this happening? Would be a breakthrough.

Yes, her tone seems to have shifted somewhat recently - particularly since she may have seen that long covid is, too, being dismissed and that the separation has not offered protection against this - but she has been pretty adamant to keep them separate nonetheless. She also recently wrote...

The CDC seems to have had real trouble figuring out whether people should be wearing masks during a pandemic, so this kind of thing seems like quite an ask. :(

The BBC's appalling coverage of long covid appears to be intensifying recently. Re: testing, where did this idea come from that you cannot diagnose people clinically? Such a test could be misused if misinterpreted and used to exclude LC.

"...elements of LP which could be explored in future interventions or research aiming to improve clinical outcomes for children with CFS/ME" :( :( :( LP and children not the combination I was hoping to be reading about today

Sorry if this has been covered, but do you think fibromyalgia is a distinct condition? Do the people diagnosing it think this?

"The areas of expertise that have been suggested are wide-ranging, from people who have severe ME/CFS or care for people with ME/CFS, to people who have recovered" Strange placement of "people who have recovered" here. People with severe ME/CFS are not on another side of an argument or contrast...

What are the ethics standards for mouse studies, if any? This made me weirdly sad. (See profile pic) :( Edit: sorry about my silly posts sometimes. I just really love animals! :)

(I have the same comment about lack of PEM/PESE surveillance as in the last update!) :( Pretty fed up with the lack of tracking of this symptom in the UK.

I have previously been quite shocked to hear about large "standard" US salaries amongst non-low-wage/etc earners, including of recent college graduates. Some of these salaries are running very high, especially in the geographical area relevant here.

Yikes, some of these are quite bad imo. Can anyone just write one of these? I would have done it the other day, as I had the energy. It is depressing to see this old "debate" continuing having been brought up again for no good reason. The BMJ in particular has seemed determined to have this...

Same - I have one doctor who helps me at the practice and she knew me before. (I am terrified of her retiring). However she also once told me a decade ago that I was the most severe case she had ever seen. This worried me at the time as I was still able to go and see her for appointments and...

The 250, 000 pops up in the NICE draft guideline in the "context" section at the end on p71: https://www.nice.org.uk/guidance/gid-ng10091/documents/draft-guideline They cite the UK Biobank: "Recent data from the UK Biobank suggests that there are over 250,000 people in 16 England and Wales...