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With some experience of recording ahmm this will have far reaching effects. The tribunal said they knew the assessors lied with no prompting. But then lied themselves in their reasoning and failed to supply the mandated paperwork. We also discovered that the assessor lied - (not new news) when...

We in the uk have all fallen foul of the DWPs perverse thinking. Your story is a mix of my experience and my wife’s. I do think the plan a journey and being out unaccompanied safely reliably was part of the pip mobility score. The Dwp phoned her a few days prior to tribunal and really did not...

Have you progressed this with a Formal medical diagnosis? My wife with ME has this problem even to not knowing which room in our house is above her location let alone forming a journey path. I did try to use this disorientation to get her mobility PIP. Our friendly DWP did not like the idea...

I detect the electrical buzz from non earthed metal switches and double insulated metal such as the bezel of our 1 year old Sony tv. Any metal object situated under ht pylons seems to buzz for me it’s not really at shock level more of a vibration tingle. Playing games, my wife touches the object...

No body stretching and at least reduced yawning. Sense of smell changing over the course of years. With some odours being totally undetected while others being very apparent. at present the smell of mice in the garage for example. Normal bleach is impossibly strong but there is another...

Beware of the accuracy of the standard devices when making comparisons. A Google search suggests Readings within 3% is considered acceptable. Some are manufactured with 5% variability. So effectively pointless when making comparisons between devices. I managed to borrow a calibrated NHS pocket...

Ha as an ex engineer I use this proposition in life. Non engineers jump with shock and think it’s my actual position. It never fails to make me look stupid or irrational. Perhaps that’s why I retired.

Trying not to break forum rules, my wife is expecting to have an early detected, small and non spread breast cancer removed in the next 18 days here in Essex. Is your 'insane' due to post surgery radiotherapy issues? Or just presenting at hospital at present? I have yet to find any information...

Sounds familiar 20 plus years ago thankfully. Agree the gouging sounds odd but I can recall feeling my eyes were being pressured to pop out and pain to their sides. Desperate times, can I suggest wheat and dairy free, no tomatoes or coffee plus try tick tock tea as it’s anti inflammatory tastes...

Thank you all for your comments and links. Today I had an ultrasound session. It seems my GP booked it to achieve something new, but I can not understand why. By requesting a scan on just one knee and thigh the radiology doctor would only (minimal) look very close to the knee area- which both...

Perhaps we should consider the final target of Graham’s excellent work? For me I think DWP / PIP. For others it could be GPs or specialists already knowledgable / researchers. Each group would “see” the responses in a very different light unfortunately. For DWP the criteria of reliably...

Lipoma, another autoimmune ME like fatiguing condition or MUS for depressed females! Undertaking a search for lipoma I was surprised to find papers suggesting fatigue and breathless as symptoms. Fatigue of type unspecified, but many of the symptoms listed by NIH mirror aspects of ME. Some...

While answering yes, the actual response should be depends. When unable to function /pem a bag of peanuts and coke is a reviver within 15 minutes. But an evening meal often causes prompt retirement to bed with fatigue which is not the same as pem. Of note is when taking picolax for colonoscopy...

But on the other hand, if courts granted section 21 notices “eviction”and easy enforcement for Multiple non payment and trashing the place Then landlords would be more willing to accept the risk? My young daughter bonded with a single claimant and was taken for a ride loosing £5 k. From damage...

Not so easy to monitor, but I would like to see some thought put towards measuring gait or sway as day / pem progresses. How a pwme signals or reads wether they go left or right when confronted face on to a normal person eg both collide or both step into each other. I assume there is a...

I went via the practice manager who is non clinical. I cited and referenced in writing that the average gp practice of 8,000 patents should have around 28 sufferers. Which was derived from a nhs england survey? I said none of the 4 gps consulted knew about Pace or even cbt ge .... more a case of...

For twenty plus years I have felt ME was very akin to exposure I experienced in 1979. In essence Exposure is body fatigue, or inability of body core to maintain temperature causing multiple physical and mental symptoms. Energy is unavailable due to lack of ‘food’ or unsustainable wicking away...

Having abused your lettuce with whatever, plant the root into a glass of water and give it a little sun. Perks them up and exposes it to uv. Probably true for other root vegetables. we have been using Milton tablets - baby bottle steriliser type, 27 years past sell by date tho. Hope it works...

A friend has received the letter instructing them to isolate for twelve weeks due to lupus. lt instructs that the still working partner who is in a low risk occupation has to leave their shoes at the door outside, strip in the hall and directly shower preferably in a different bathroom. They...

Having found a ppf3 mask in the garage, last used in October. I notice it’s got mould on the fabric. So I suspect the moist exhaled breath provides an ideal breading ground if left. I am suggesting keeping any used masks in the fridge or freezer in between bleach dunking to be worthwhile. It’s...