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Yes, my issues, not with eating my meal at the weekend, posted earlier in this thread, but with keeping it down sent me straight into PEM 14hrs later and then in came the light and sound intolerances an hour after that.

Snap :D

Is this what you were thinknig of @Robert 1973 ? 4.pdf

For the record, because it's been a busy day - this was first published online at 17.25 today. It states: My bold. When there are any do please let us know.

Could the 'allostatic load' (yes I had to look that up as well) which is referred to in the letter possibly be due to the decades of abuse we have had to endure from such professionals? just a thought because they don't challenge the NICE Guideline 2021 on that. ETA NICE guideline on ME/CFS...

So can someone please help me understand this, thoughts just drifting out the top of my head at the mo. This Prognosis Review paper in 2005 covering "CF" and "CFS" in which they include as part of their aims: and which also discussed work outcomes - did nothing about it until this paper...

That's an incomplete answer in connection with ME, also known as chronic fatigue syndrome in respect of leveraging international co-operation to accelerate (a) biomedical research and (b) treatments for (1) ME. It says nothing except 'unmet need'. They would argue that the 2021 NICE Guideline...

Noted. In the sense that a woman can be hysterical, as opposed to an event such as a terrorist attack or global pandemic for example, can be the cause of mass hysteria?

Now I've regained my composure from the blubbering mess I was after reading this earlier today - an enormous thank you to Chris and Simon.

Update I had exactly the same meal yesterday at the same time but about a quarter less of the previous portion. No sickness but slight nausea. Today better tolerance to light and sound though still sensitive, still mostly bedbound. Obviously this is my experience as an OAP. When...

I'm chiming in with another anecdote, from the early hours of this morning actually. I'm currently in prolonged PEM, worsened by the addition of activity in the last 2 weeks surrounding my discrimination complaint. My carer cooked me a chicken casserole and pureed squash yesterday of which I...

One further thought @Trish I think I may have found what may be behind this phrase Ben Spencer used myalgic encephalomyelitis or chronic fatigue syndrome: This paper P. D. White, What Causes Prolonged Fatigue after Infectious Mononucleosis—and Does It Tell Us Anything about Chronic Fatigue...

Ditto, except, depending on the prolonged length of PEM, will stay as part of the illness e.g. very severe ME. In my case I've experienced a 6 month crash - teetering between severe and very severe - which has brought with it partial incontinence. I don't know yet whether that will recede...

Here are mine. Ben Spencer has tabled 6 questions on, ME or CFS. Referencing the illness properly, i.e. myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS), would have been the correct approach. It is not the patients’ fault that the PACE trial researched CFS...

Never more so than now in the UK. I've just discovered that the Tory Shadow Minister for Health and Social Care is a psychiatrist interested in Chronic Fatigue Syndrome Research and Care. I've detailed it here...

:D:thumbup: That's where my email nearly ended up!

Thank you George Monbiot, although it has taken me ALL day to read through it. So before I crash for another few days, here's my take away from it. In one of the links in the body of the article dated 1st November 1998 , I discovered that George has been writing about this for a very long...

This.

Yes, exactly that, and thanks for putting a name to it. I do that kind of thing everyday in little ways, like you say, as we all do. The pasta incident was at my worst. Although the submerged hand and wrist were immediately bright red, absolutely no pain for at least 24 hours, boy did I...

I have a relevant anecdote to share on this. After a 12 month period of bedbound with severe ME/CFS immediately on completing the NHS management course, I began to slowly increase activity (using 50% of energy envelope to the point where in the spring of 2013 I could spend 20 mins a day on a...