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Thanks @Sean

Crikey @Trish what a herculean task! :laugh: you're definitely not pacing. I downloaded it from the Cochrane thread, saw it was yet another single line space 70 odd page document to plough through and thought - hell no! Safety, safety, safety. The WHO have been highlighting this since 2004.

This is Phillipa Langley in her own words: Judicial Reviews, Licences, a comma and a box in a University: Philippa Langley found King Richard III's bones

That's interesting when read in conjunction with the liver problems.

Thank you for posting. ETA: They don't say when in March 2024 the EGM was called, and there clearly was a significant issue over how it was called. Note this thread covering the 27 and 28 March 2024. United Kingdom: Kings College London; South London and Maudsley NHS Trust | Page 6 |...

and 10 years from now they'll be able to say - see, we told you it was due to childhood trauma and trust issues, and it's not the therapist's fault, it's the parents. This is what abuse of trust looks like. The consent is given by the parents who then 'treat' the child who assents to the...

And that 'recovery' rate was waved in front of our faces during a coffee break in the course I was on. Not during the course work. Somewhat like the newsletters published during the trial. I trusted the NHS all my life and I've paid for that for the last 16 years in ever increasing circles...

Thanks Trish.

Simon Wessely: ‘ECT is in my own advance directive’ | MHT Simon Wessely: ‘ECT is in my own advance directive’ Barney Cullum 22 August 2018 Professor Simon Wessely, chair of this year's Mental Health Act review, discusses issues including treatment preferences, advance notices and consent in...

Only just seen this, does anybody know if there is a .pdf available of this letter. Had vacs yesterday and not too well at all today, so haven't capacity to search? Well done by the way.

I did a search from 1 Oct and 30 Oct 2024. Here's the link. Find written questions and answers - Written questions, answers and statements - UK Parliament

This thread should be read in tandem with this one Fatigue and sensorimotor instability Neurologically controlled conversion of post-COVID-19 patients, 2024, Urban et al | Science for ME

It doesn't say when this 3 year study was submitted for peer review. I suggest this paper should be read in tandem with this one...

This. and this: translation you can control your symptoms by changing the way you think about them, and we'll explain how. (therapuetic exception to autonomy) or any at all. Entering a service diagnosed as mild/moderate and 6 weeks later being discharged back to GP as severe is a...

Ah well, Somerset's the very place for ye olde cider. The weather is another story, you can see why we all talk about it, incessantly. Enjoy your day and please pass on my thanks to Brian Hughes.

You know that phenomenon known as jetlag - some way towards understanding what ME/CFS 'feels' like ev-er-ry day, then add in all the crap like pain, sensitivities, nausea, not being able to keep food down, scrambled words and thoughts and the rest. I'm sure they're looking after you, and try...

Like you've been busy doing in Northern Ireland today, I notice from Brian Hughes post.

Thank you. Thanks to everyone who contributed, thanks for listening, thanks for hearing and thanks for acting, as always.

Who's to say they're not doing both when there has been no method of officially reporting harm from psychosocial treatment similar to the yellow card scheme? That only changed in Oct 2023 when the HSSIB relaunched, but it has not been tested yet on this subject matter.

The ability to silence a story is inextricably linked to the power to do so. When, when have pwME EVER had that power.