Search results

I think the approach of each patient picking 3 activities they currently can't do and want to be able to do may be OK for a trial of a treatment, with the follow up running for, say, a year, might be OK to give a clear indication of whether the treatment has had a clinically significant effect...

Can anyone find ths statement on the BACME website? I've searched and can't find it.

I have no idea what this means. Resilience is commonly used in work settings where bullied workers are expected to be more resilient in coping with the bullies, rather than removing the bullies and providing better management. No mention of PEM. Surely that's key to understanding the young...

Thread here: https://www.s4me.info/threads/our-own-delivery-plan.45305/

None of them has a clue. Nobody does.

Someone said earlier on this thread that BACME were not involved in development of the plan. Their statement says they were, it is signed: I note in particular their statement makes it clear they think existing therapist provided services should continue. Yet the Development plan says mild and...

Good response, thanks Hilda.

I first came across the word liminal when doing a poetry writing course. I think it should have no place in medical articles, it's too vague and confusing, intended to sound like they have important understanding of the problem when they are talking bullshit. This is another output of social...

I got the impression they were trying to persuade that Long Covid is a disabling physical illness not psychosomatic, and needs to be taken seriously by doctors. For reasons only known to themself they decided that in order to get this straightforward message published and to persuade their...

Discussion of the Science for ME Fact Sheets has been moved to this thread.

Thank you @dave30th for this article and thank you Sarah Boothby for continuinig to fight for justice and decent care for pwME. I am appalled that BMJ failed to post Sarah's comment on the article.

Please can you ask ForwardME to make the talk by ELAROS and the ME organisations questions and responses public online. We should be allowed to see what spiel they are selling to ME organisations. And what the ME organisations are saying to them. And not just as sanitised minutes.

Good idea. Anyone volunteering? I can't see why any medical training materials provided by the NHS should be kept secret.

So not an ME/CFS study, a fatigue study.

What a wonderfully apt image. Thank you.

And there we were four years ago thinking the NICE guideline would make a difference. We've been stitched up yet again. The same therapists doing the same useless stuff and pretending it's NICE compliant, and still no services for people with severe and very severe ME/CFS. I guess we should have...

The constant stream of papers like this and people getting PhD's on the basis of this sort of 'research' is criminally negligent in my view. The supervisors should know that correlation does not equal causation, so should the students. And the whole practice of getting sick people to fill in...

I think it's probably more a case of indifference. The government minister who set it up was from a different political party and had a personal interest in it because of a family member. The current government's actions make it clear that their approach to ME/CFS is more guided by the...

Those octopi clearly need therapy to overcome their false limb beliefs.

I read the article before reading anything about the author. As soon as I got to the bit where he claimed he could diagnose and treat a list of different subsets of patients, I thought, quack touting for business.