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Thread here: https://www.s4me.info/threads/guardian-angels-off-duty-me-cfs-is-sustained-by-an-impaired-stress-response-in-the-central-nervous-system-2024-renz-polster.40999/ I don't have the energy to read that article again now, but I note it is an unpublished hypothesis article and our...

We also have the examples of other diseases where the treatment, such as chemotherapy can make you feel much sicker before it cures you, so both doctors and patients are accustomed to giving and receiving encouragement to persevere with treatment despite the unpleasantness. Some ME/CFS...

Hi @Natalie. Thank you for your response. I'm struggling to read your posts because they are full of abbreviations which I struggle to recall what they mean. What is IFL? A question. Is there any solid evidence that people with upper airway resistance syndrome or sleep apnea experience...

Another thing I gleaned from the webinar that I want to record before I forget. The session was started with a short introduction from Russell Fleming who has a senior role in the MEA. He spoke about about the origins of the Clinical Assessment Toolkit project. The MEA was involved in some way...

I was able to access the webinar today without any trouble. I realised after I failed yesterday that I had missed the one email that actually had the link directly to the webinar. I was messing about with some of the other emails that gave me links to tickets which didn't lead me to webinar...

The shirt example starting with folding half a shirt reminds me of someone I know being advised by an OT to make her trip (taken by car and wheelchair) to the local library more managable and less exhausting by breaking it up into stages over several days. We had fun imagining where she was...

Their details are listed on the Charity Commission website: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/5213556/charity-overview?_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_organisationNumber=5213556 Some quotes

I read a couple of her pieces. I appreciate their brevity. I like the realism of this one: Pacing in the Real World Where stopping isn't always an option. It ends:

Was it worth the effort?

I wasn't allowed in either. Maybe it didn't happen.

I'll go and watch an old episode of Line of Duty instead. A bit of murder and mayhem less stressful than this crap.

I gave up. It kept telling me I could view my ticket and giving me one time codes which took me back to asking me if I wanted to view my tickets. Nothing for how to use the damn things to watch the webinar,

Help. Is anyone else expecting to attend the Elaros MEA webinar in 5 minutes time? I have spent the last half your trying to figure out how to get into it. I have multiple emails including one with a link to get my ticket, but no way I can see of actually using it.

@SNT Gatchaman, I hope you will be able to watch and comment on this.

More from the MEA article about the toolkit. FAQ's https://meassociation.org.uk/mea-cat/ The following is the complete FAQ section copied from the linked article. (I haven't put it in a quote box to make it possible to multiquote sections for discussion) How is a clinical assessment toolkit...

I have been looking more closely at the first questionnaire https://meassociation.org.uk/mea-cat/ The question change for each section, with some asking how much of the time you experience them, some asking how severe they are, and some asking how much they interfere with activities. I can see...

They have rejected the idea of having a CEO saying they can't afford it. The are having 5 divisions each with a lead, internally recruited. The team leaders work as a cooperative to lead management So no different from now.

I have signed up for both. There is also one on Thursday on Long Covid which I haven't signed up for.

Copy of bluesky posts: Neuroanatomical Considerations in Pediatric ME/CFS Monday, December 15th at 1pm Dr Peter Rowe's 5th in webinar series Provider-oriented & patient accessible lived experience panel Available online at:Youtube.com/@MEActMaryland KEY POINTS (1/3)~ Subset of individuals...

Thanks, I'll copy that information to an MEA goverance thread so we can discuss it there. Please go here to discuss this: https://www.s4me.info/threads/united-kingdom-me-association-governance-issues.42093/post-659695