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Here’s the paper: https://academic.oup.com/eurpub/advance-article/doi/10.1093/eurpub/ckae034/7616634?login=false

Worth adding that the statisticians behind the ONS estimates put out a paper suggesting that around 20-30k ppl are out of work in the UK due to Long Covid. Extrapolating from that "limited a lot" category is quite difficult - there are just so many Long Covid phenotypes. I think the simple...

Me and @yannlk have written a lot about the group of patients propagating these kinds of views in this thread: https://www.s4me.info/threads/usa-long-covid-action-project.38193/#post-528390 We're talking about a highly abusive and frankly slightly extremist fringe group within the Long Covid...

Topple didn’t write this one - it was another writer called Hannah Sharland who I haven’t heard of, but you’d imagine Steve had some input. (Full disclosure I’ve worked with Steve in the past and am a huge fan of his)

The Canary, and Steve Topple in particular, has provided some absolutely excellent coverage on ME and Long Covid. This article sadly bucks that trend. At least they mean well here.

FND is all or nothing in a way that viral persistence isn't. If biological mechanisms drive Long Covid and ME, these conditions aren't FND -or maybe there is a tiny FND subset of Long Covid. If Long Covid and ME are FND, biological mechanisms become largely irrelevant. Even if viral persistence...

If you want to get some sense of what LCAP is like scientifically, this substack from an LCAP-adjacent figure who has fallen out with LCAP is quite informative: https://www.thepeoplesstrategist.com/p/bernie-sanders-released-a-long-covid?utm_source=profile&utm_medium=reader2 Highlights include...

I followed this post and it's difficult to understate just how abusive and nasty some of the responses were from members of LCAP and LCAP adjacent figures. You had several people who couldn't string together more than one, maybe two coherent sentences without personally attacking yannik. Over...

I disagree with the comparison to FND. There have been quite a lot of viral persistence studies at this point, so we do know that viral persistence is a *thing.* Lots of questions remain - why has viral persistence been found in many people who have completely recovered from covid? Is there any...

A commentary on that study was just published in the Lancet. Nice and understandable for people like myself whose main scientific qualification is biology GCSE! https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(24)00216-0/fulltext

My biggest problem with the study is that I have little idea what they mean by ‘Long Covid.’ I know of people who have brain fog post covid but no other symptoms. I also know plenty of people who have brain fog as part of an illness that looks identical to ME/CFS. Does the same mechanism drive...

LCAP is by far the least serious part of the Long Covid patient movement. It's almost difficult to know where to start with them. - They have called for $28 billion in funding *a year* for Long Covid. Yes, they think it's realistic to ask for half the NIH's annual budget at a time when the...

I also help run a support group for young adults (18-33) with Long Covid and ME/CFS. But before participating or sharing this in that group, I'd want to know a bit more about the research. I think it's potentially a really fascinating question. I fell ill when I was 22, and being significantly...

Hi - I’m 25 and developed ME/CFS following a Covid infection. Would you accept people who have a dual Long Covid and ME/CFS diagnosis? Also, what would participating involve - how large a commitment is it?

Very much agreed that focusing on specific phenotypes - post-hospitalisation Long Covid, post-covid ME/CFS, post-covid POTS and so on - will be decisive in determining whether the investment is successful or not. I personally wouldn't be too worried about the likes of Walitt. The thing about...

If this passes, it would change *everything.* Sure, RECOVER has spent its funding badly, but that was somewhat to be expected given that they were approaching Long Covid as an entirely novel entity. The NIH is now well aware of much of the more interesting research that has happened outside of...

It's very paternalistic - he talks about people with Long Covid and autism/ADHD in the manner of a 19th century anthropologist talking about a "native" society. There is no attempt at dialogue, and of course, as you say, if you asked an autistic person about waiting times, or a Long Covid...

"Garner, a friend of mine" - says it all. It's also rather funny that they identify the two key drivers of Long Covid as a) "the biomedical community" and b) the mass media. The vast majority of relatively debilitating Long Covid emerged in the earlier waves and before the vaccines. If you...

Abstract Outcomes following SARS-CoV-2 infection are variable; whilst the majority of patients recover without serious complications, a subset of patients develop prolonged illness termed Long COVID or post-acute sequelae of SARS-CoV-2 infection (PASC). The pathophysiology underlying Long COVID...

And here is an accompanying commentary that concludes with a hint that exercise therapy should be prescribed for ME/CFS (though they somehow omit any discussion of the vast literature on ME/CFS and exercise therapy). Tiresome...