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  1. tmrw

    Research news from Bhupesh Prusty

    He works in Würzburg, so it will be this clinic: https://www.ukw.de/startseite/ More isn´t known at this point:
  2. tmrw

    Vagus Nerve Stimulation

    Some vagal stimulation studies discussed: @Penelope McMillan I am interested. Are you still using the device? Do you still experience benefits?
  3. tmrw

    ME Awareness Day / Week / Month, May 2021

    There has been some coverage in Germany. But mostly the same loyal journalists who have written in the last year(s). Newspaper https://m.tagesspiegel.de/gesellschaft/chronisches-fatigue-syndrom-100-000-erkrankte-mehr-aufgrund-von-covid-19/27180710.html...
  4. tmrw

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    He believes he cured his ME with exercise. This is the logical next step. I don't think it has anything to do with any patient responses.
  5. tmrw

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Oh no. It’s even worse. It is more authors. Look who is here: Per Olav Vandvik, Elie A. Akl, Sue Brennan, Philipp Dahm, Marina Davoli, Signe Agnes Flottorp, Paul Garner, Joerg J. Meerpohl, Reem Mustafa, Maria X. Rojes, Gordon H. Guyatt McMaster University 1280 Main St. West, Hamilton, ON, Canada...
  6. tmrw

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Merged thread New Response by an associate professor called Jason W. Busse McMaster University Canada.
  7. tmrw

    How to pack a punch (reputable sources that link Long Covid and ME/CFS)

    Maybe pointing to these two studies might help: https://www.medrxiv.org/content/10.1101/2021.02.06.21249256v1 https://www.medrxiv.org/content/10.1101/2020.12.24.20248802v2 The first one is done by Germanys leading ME researcher Prof. Scheibenbogen. She works at the Charité, Germanys most...
  8. tmrw

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It is like watching the last 50 years of ME/CFS in time lapse. As you always say: The same mistakes are made again. In a perverse sense it is really fascinating how a profession, or a lot of its members, just doesn't want to learn anything.
  9. tmrw

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    There seem to be rules in PVF and ME/CFS recovery. Please correct me if I am wrong, when I am struck by sudden remission I want to do everything right: Rule 1: If you get into remission, you have to right a book, or a big blog post at least. The bigger and more public the better. Rule 2: You...
  10. tmrw

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Also Prof Garner didn't "end up" being a public advocate. He chose to be one by writing three or more ramblings about his state in the blog of a medical journal. It is great that he wanted to point out that there are a lot of people with "long covid". But he could have done this as well without...
  11. tmrw

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Please do! Your voice has the weight ours hasn't.
  12. tmrw

    The possibility of autoimmunity or auto-reactivity in ME/CFS

    Interesting, I had the same kind of onset. It felt like the infection was about to start. It was intense for about 3 days. And afterwards I just felt sick. Most of the time I feel the worst just after waking up. A lot of the times I think 'oh no, I am going to be really sick' untill I am awake...
  13. tmrw

    Open Medicine Foundation (OMF)

    Trish is right. This is 99% PR for the book. It hasn't got anything to do with research. Nevertheless it's great work placing it in big media outlets just before book launch. Also: Every good story about ME is a win for us.
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