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Lengthy article by Katie Kenny on Stuff.co.nz... The narrative of Omicron as a 'milder' variant is dangerous, given what we know about long Covid, experts warn Quotes from: Dr Anna Brooks, a senior lecturer and immunologist at Auckland University Emeritus Professor Warren Tate, biochemist at...

4 minute video shared by Emerge Australia https://fb.watch/albGDbF7zM/ or post on their page...

Great article from Dr Sarah Rhodes, a cardio-respiratory physiotherapist and lecturer at the University of Otago’s School of Physiotherapy, and Dr Margot Skinner, of the School of Physiotherapy at the University of Otago, writing for Newsroom. Urgent funding needed for Long Covid With an...

Forgot to say I had feedback some concerns with the wording and desired result.

An individual has posted a petition on change org with the request to... Please support this petition to the NZ Government and the NZ Human Rights Commission, to consider giving vaccine exemptions to this [ME/CFS] community of around 25,000 New Zealanders. Link to petition...

Thank you! I had forgotten about that video and appreciate the reminder.

Hi @Adam pwme I have been searching for a short video to share with people newly diagnosed with ME. One that explains what is known about the pathophysiology currently, the IOM 2015 (NICE?) symptoms and discuss management & treatment i.e. pacing, & possible treatments for individual symptoms...

Thanks so much for finding those references - makes it so easy for me to balance a conversation :)

Any thoughts on this protection /recovery protocol from https://www.wanakahealthbridge.co.nz/

Just sharing this item on TV1 from over a week ago in this thread for easy reference (it was previously shared on another thread). Interview with Prof Tate, University of Otago, and statement from Fiona Charlton, ANZMES. Erica Stephens also shares her experience with an adverse reaction to the...

In-depth article from Michael Hall, Radio New Zealand, Health section (3735 words, 20 minutes to read?) https://www.rnz.co.nz/news/what-you-need-to-know/456714/is-long-covid-a-new-type-of-chronic-fatigue-syndrome "Is Long Covid a new type of chronic fatigue syndrome? Health organisations...

Fiona Charlton, president, ANZMES has sent out the following email to the regional groups for wider sharing... clarifying expert advice on COVID-19 vaccine for people with ME/CFS "An article by RNZ, which was also picked up and published by Newshub has a misleading heading and some errors...

I have heard rumours that there are several patient surveys of the results from the Lightning Process. I have found a Norwegian Report that shows 50% of patients worsened (some severely). https://www.me-foreningen.no/wp-content/uploads/2016/09/ME-Nat-Norwegian-Survey-Abr-Eng-Ver.pdf Are there...

ANZMES have released preliminary results of their self-report vaccination experiences survey... ANZMES Preliminary survey findings – ANZMES Key result from this self-reported survey: "These findings suggest that the more disabling the ME/CFS symptoms, the more prone to a relapse after...

I am interested to know @hibiscuswahine what has helped you from your 'training in the bio-psycho-socio-cultural-spiritual model of health'? Could we say that the best advice for ME/CFS seems to be resting, pacing, acceptance, and living as well as possible with regards to friends, food, and...

Possible research into fractionated doses of the pfizer vaccine for pwME Fiona Charlton sent this information out this week: People have previously been encouraged to complete the survey that ANZMES currently has open about vaccination experiences, concerns and interest in participating in...

The ANZMES AGM was held on Saturday 6th November 2021. Fiona Charlton was elected president, and there are some other new faces from last year's AGM too. A new era for our national ME organisation ahead. Fiona recently send this introduction out to the regional groups... In other news from...

Just thought I'd share this in case it is helpful. Update on Vaccination Exemptions: The info on vaccine exemptions on the MOH website was updated 9th Nov. It now specifically mentions that people with severe ME/CFS can get a vaccine exemption if they have a severe reaction to the first dose...

M.E. Awareness NZ obtained permission to share the 18 September article in the NZ Listener about Post-Viral Illness. The Listener is a print only publication, and does not have online content. https://m.e.awareness.nz/beyond-the-myth

ME Auckland have announced that Prof Warren Tate will be speaking at their online AGM...