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I know a medical professional who is doing the 2 hour Lightning Process Training for health professionals with Jenny Oliver at the GPCME South on Thursday, 10th Aug so that they are informed about what is being offered to people with ME/CFS. Can anyone recommend any articles /threads that would...

Thank you for the critigue Hutan.

Good article published on Thursday, 3rd August by Alice O'Connell “They Said it Was Menopause – It Was Long Covid”. The Impact & Scale of Long Covid & How NZ Women Are Being Gas Lit Before Getting Answers https://capsulenz.com/be/long-covid-gaslit/

From a member of M.E. Awareness NZ... Upcoming interview on Long Covid tomorrow (Saturday, 21st July 2023) - Danny Altmann is speaking with Kim Hill on RNZ. At 9:05 am Saturday. Altmann is a leading immunologist and co-wrote the Long Covid handbook with Gez Medinger. He will likely also talk...

Thank you so much for spelling out some of the considerations and traps @Trish, @Ravn, @Midnattsol and @Hutan. It is very much appreciated.

Posts moved from News from Aotearoa/New Zealand and the Pacific Islands The dietician has asked "how feasible it is to measure people’s experience of fatigue and change in severity of fatigue in response to a nutrition intervention. ...PEM is a feature of ME/CFS and I would like to hear... how...

I have been contacted by a gastroenterology dietitian at Christchurch Hospital, NZ, who is also a researcher at the University of Otago Christchurch. They are wanting to discuss their ideas for research into the role of nutrition in the management of ME/CFS - with someone /people living with...

Thank you @Ravn for your guidance and input into the content for this presentation.

Apparently, a Royal Australian College of GPs committee is meeting to re-evaluate its recommendation for graded exercise therapy for ME/CFS. Final decision is due end of May. Has this been discussed here? The committee values the 2019 Cochrane review into exercise therapy for ME/CFS. I don't...

Thanks Ravn. Sorry for the effort required to respond to my question. I find it so hard saying "listen to us, this is a real illness" and then not being able to describe what's going wrong, nor quality research to show it. I will improve the references used in the next letter! Thanks for the...

Hi I quite like the following single sentence that states what researchers are finding in ME/CFS. I think it has been suggested here before, or did it come from Emerge Australia?. Anyway, this is what I am referring to ... I have a couple of questions related to this statement: A. Would you...

Thank you for that enormous effort on behalf of the ME/CFS community @Hutan Congratulations! Thank you for making yourself available.

Bhupesh K Prusty has shared on twitter... To discuss Prusty's work go to this thread where the tweet has also been posted: Research news from Bhupesh Prusty

I see that Dr Vallings recent article in the Journal of Primary Health Care (Journal of The Royal New Zealand College of General Practitioners) has been discussed in another thread in this forum. Thought I'd include the link in this NZ thread for ease of finding later...

Bruce Arroll, head of the Goodfellow Unit, Auckland University and LP supporter (training in it from what I understand) and Jenny Oliver, LP practitioner, were given the opportunity to respond to Dr Vallings article in the Journal. However, Dr Vallings was not given the chance to respond to...

At a recent webinar, Dr Lynette Hodges, Exercise Physiologist, Massey University, asked what pwME would like her to study. Any ideas here? and I can pass on. This post has been copied and following discussion moved to a new thread: Suggestions for research using CPET

This post has been copied and following posts moved from News from Aotearoa/New Zealand and the Pacific Islands At a recent webinar, Dr Lynette Hodges, Exercise Physiologist, Massey University, asked what pwME would like her to study. Any ideas here? and I can pass on.

It is to be read on 20th Sep now. From an ANZMES rep... "... it will be read on 20th and all media that day will be funeral coverage. We're not attending like we were going to, we'll rerelease our press release but not make a big fuss on 20th as a lot of our media contacts are in UK, and those...

Due to HRH the Queen's passing, the petition will not be read on Tuesday, as there are legislative changes to be dealt with and then parliament will close until after the State funeral. It's not likely to be read until the second or third time they meet after that. ANZMES will be advised of the...

Radio NZ reporting tonight... https://www.rnz.co.nz/news/world/474423/top-scientists-join-forces-to-study-leading-theory-behind-long-covid It doesn't sound like they are looking at ME/CFS research or collaborating with?? This post has been copied to the thread about this research: 'Long Covid...