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  1. Lilas

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Exactly DokaGirl. Since the start of the illness (12 years ago), I have never stopped taking walks several times a week. At the beginning it was 45 min., but it made me so sick (PEM), that I had to reduce to 30 min. On those days, I then have to lie down for the rest of the day. This is the...
  2. Lilas

    Sleep meds poll

    I take 25 mg of amitryptiline, 1 hour before I go to sleep. It is the only med that help me, otherwise I hardly sleep anymore (1 to 2 hours) and I remain in a crash indefinitely ... scary. Even though with this medicine my sleep remains imperfect, at least I am sleeping. ;)
  3. Lilas

    Pain meds poll

    For my chronic pain, I take each day "little" dose of amitryptiline (mostly for sleep), pregabalin and mirtazapine. If I forget the last one, I will know soon because my pain will increase. When I'm in crash, I have no choice, I have to take one dose of demerol (opioid). NB: I'm always in...
  4. Lilas

    dry eyes

    I had a similar problem that I am currently "controlling". Only with the right eye, recurrent and painful inflammatory redness for several months. My optometrist diagnosed me with conjunctivitis (right eye only! And extreme dry eye), antibiotic and corticosteroid drops finally healed him. But...
  5. Lilas

    Patient Submissions to The Canadian Pain Task Force

    I absolutely agree brf. I filled out the questionnaire, clearly testifying that psychosocial strategies have no effect on my moderate to severe chronic pain. I specified that the government should put money on biomedical ME research and pharmacotherapy. PS: Excuse me for spelling mistakes...
  6. Lilas

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    At the other forum, Mattie reveals his testimony after 1 year of CCI surgery, I think it's very enlightening... Ps. excuse me, english is not my language !
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