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A donation of 3 million, it's extraordinary ! :balloons: Nevertheless, I really hope that all this money will be used wisely.

No. First, and as mentioned earlier, because "psychological" questionnaires are designed to assess psychological aspects only, without considering the context of a physical illness, which we know makes them extremely inadequate. Secondly, the “Psychs” who use them for research purposes are...

Exactly my experience, and it's been 12 years ! When the cardiologist diagnosed me with POTS, my doctor spontaneously said, a little off guard, "I've never treated that !" and yet he had a detailed procedure to follow written in the cardiologist's report as to what treatments to try.

Signed ! :)

I would say, without understanding why, already living with less energy than the majority of people. Being able to keep up with the general pace (at school then at work) for only a short time, " fatigue " arriving quite quickly and requiring a recovery time already longer than normal. I...

Of course, implied is their theory " learn to control, reduce your pain through your psychological well-being ". Well, what if I'm in pain and I'm still in a good mood and relaxed ? I assure you, that's my state of being most of the time. Persuading people that physical pain is always also...

Thank you very much for this information @Ravn , it enlightens me. I didn't know about erythromelalgia. Without doing a self-diagnosis, I'll keep that in mind. This is one of the "weird" symptoms I have with ME. Couldn't tell my GP about it, yet another "mysterious" symptom. Facing suspicion or...

A simple question, could the following be related to SFN? : It's not every day, but recurrently, either when I go to bed or wakes me up at night, my feet burn, like boiling, and very hot to the touch (only my feet). More than unpleasant sensation making it impossible to sleep without cooling...

Dear @Mij, I understand your apprehension. Yesterday I had my booster dose, Moderna, following the 2 Pfizer vaccines... very painful for me the side effects of Moderna (worse than my 2nd Pfizer). It's been 24 hours now, and I'm still in a lot of pain with exhaustion : triggering a bad PEM. Last...

Thank you very much, hoping that a french translation will be available if possible...

From the article: A Stanford bioethicist, Hank Greely, says " You’re selling a test that you’ve got no good evidence works, and then you’re using it to prescribe a drug that you’ve got no good evidence works? To me, safety and efficacy are profoundly ethical questions.” and, “The red flags are...

12 years of ME but looking back, I was probably already mildly affected for several years earlier (I never had as much energy as the others, longer rest and recovery time, had instinctively developed strategies accordingly, without however preventing myself from practicing outdoor activities...

Well, it's not just the omicron virus that needs to be fought, but the collective hysteria virus, oops !, I mean ISRR. I regret to tell you, dear authors, that I only fear the first since the second has the faculty of spreading only in the brain of certain psychiatrists ...

I don't see any compassion from a doctor in giving someone in pain a fake pill or even a clearly avowed "magic potion". For me, this is nonsense, dishonesty or an insult to the dignity that every person deserves. Under the guise of some supposed good, it's twisted.

For me, my booster (3rd Pfizer dose) is scheduled for January 14, which unfortunately still means a virtual Christmas via Facetime this year, for me and my loved ones. In my Province, it is currently an explosion of cases of covid, unheard of since the start of the pandemic. Omicron has become a...

There you have it, the human being is not that complex, it is enough simply to "reprogram" his mind, like a computer and as if by magic, he is healed ! See the biography of one of the authors, which says a lot ... (Psychobabble +++ https://loop.frontiersin.org/people/723738/bio) " I am an...

https://nationalpost.com/news/canada/this-covid-vaccine-can-be-inhaled-and-its-being-made-and-tested-in-canada Well, according to this article in the National Post (Toronto, CA), it's about 2 different Canadian vaccines. One is developed at McMaster University, based in Hamilton, Ontario, and...

I myself have the 2 diagnoses (EM + FM). It was only a questioning. At the onset of the disease, I was first diagnosed with FM (generalized chronic pain, severe sleep disturbance, exhaustion, etc.). As recommended, I therefore tried to gradually increase the pace of my steps during my walks...

Here also (Canada) I know that the 2 diagnoses can be affixed to the same person, that seems incompatible to me since the main difference is PEM. The pwFMs do not crash, even if they have "chronic fatigue" as you say (and their 'treatment' are the opposite as we know).

Typical document of what is produced in the US, without being perfect, I think it contains some good advice. But, something raised my eyebrows ... : " Be aware of common comorbid conditions: small fiber neuropathies, hypermobility, autoimmune thyroid disease, euthyroid sick syndrome, Sicca...