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@Trish, it's in Data Supplement under " Related Content ". Here is the full document : https://www.bmj.com/content/bmj/suppl/2022/04/27/bmj-2022-070230.DC1/hugs070230.ww.pdf First, there is the " Clinician survey for content validation of the draft SBQ-LC item pool " (File S1), to get patient...

I think that in general, Western culture is very focused on performance, capitalism obliges. Which roughly means, you are efficient = you are useful and conversely, less or not efficient = useless. That was never my personal values. Before ME, I worked with various people to help them, and I can...

(Please, I am posting the following for informational purposes, not intended to be for or against anyone.) Here is, for exemple, the definition of "malaise" according to MedlinePlus, from the National Library of Medicine (NIH): https://medlineplus.gov/ency/article/003089.htm Further on...

Oh @Wyva... :( Absolutely. :heart:

I'm sorry you had to put up with this. It hurts not to be understood and it doesn't inspire compassion for these people either. Personally, I am lucky to have relatives who generally "understand", even if sometimes I have to repeat because they forget a little. If I feel that my limits are not...

Despite its "friendly" view, I also found this article nevertheless enlightening on the current situation of psychoanalysis : For info, in my Province in Canada, the great majority of psychologists (the only ones having the right to practice psychotherapy*) are not psychoanalysts. And here...

I am speechless... :jawdrop: Well, it seems that psychoanalysis has something of the secret of a sect, since despite the many decades that have passed (this journal dates from 1950 !), it is still impossible to consult it unless you buy it. I only found the following article by the same author...

Exactly, under the guise of some good, condescension, prejudice and lack of authenticity show through in some sentences. Maybe I'm too sharp but it's a bit like someone who tries to understand the other without sincere desire... " They want to be able to discuss their beliefs about the...

One of the authors, the neurologist and prof. Jon Stone (University of Edinbugh), created a website to " learn all about FND ", promoting this uncertain disorder. This is what the proof on which he builds his whole theory looks like...

Oh Lord, I've been thinking this for a long time... They want their theoretical model to exist so badly that it completely blinds them. By pride or whatever, the result is that they distort reality and therefore constitute a potential danger for patients.

This is also true in french, "malaise" can also express a general discomfort: " Sensation pénible et vague d'un trouble physiologique " (French dictionary LeRobert). One of the synonyms is "incommodité " (inconvenience) which also means discomfort. That's why I still prefer " intolerance à...

@Mij , I would say that the term " malaise " is less pejorative indeed than " fatigue " (very overused), but has a very vague meaning. While the expression "exertion intolerance" (intolérance à l'effort) is better in my opinion because it is significantly more specific.

I don't live in France but I speak french, and I can tell you that the connotation of the word "fatigue" has exactly the same harmful connotation as everything @Trish said. I totally agree with her.

A precision @DokaGirl: I am therefore lucky because, in my Province, the basic sanitary measures (mask in public places, physical distancing, hand washing, isolation, etc.) are still in place. And our government is following public health guidelines, no 6th wave deniers here.

(Sorry if this is irrelevant and I'm not bringing anything new, my memory has holes...) I have the impression that the process leading to PEM sometimes resembles reaching a threshold of effort (which may be variable within a pwme and between pwme) and/or to something that accumulates...

@DigitalDrifter, here is the text of the ad:

Here is a link to the full article cited above : www.readcube.com/articles/10.1007/s11136-016-1406-3?shared_access_token=uJCUPIecRN788WfAHxrzzfe4RwlQNchNByi7wbcMAY7yGjsjRnmV8ZBFwoldRsMrb5lYaWTqHg9IdRBx13mhZY9GtRTOWTbcTJwoU8HUdtElsIWQXm7DotKzuBNeBfub86s1g5agLJP0n1ovBB11babf284yLC38grg1J5DHyCM%3D

I'm sincerely so sorry to hear that ! :( I had no intention of pretending to know exactly the way forward, it is the aggrieved Norwegians themselves who are best placed to say so. I just read the blog " A Messiah in the Norwegian healthcare system ? " written by Nina E. Steinkopf * ...

Good God, but wouldn't there be a group of lawyers who, by pro bono, would take charge a class action against these LP instructors and the Norwegian Labor and Welfare Administration ? It seems to me that the seriousness of the damage suffered by these many people amply justifies it. The...

In the introduction to " Somatic Symptom and Related Disorders " (which includes FND) from DSM-V reads: " However, medically unexplained symptoms remain a key feature in conversion disorder and pseudocyesis (other specified somatic symptom and related disorder) because it is possible to...