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Interesting article and report appeared this week on Ici Radio-Canada (French). https://ici.radio-canada.ca/nouvelle/1892980/difficile-retour-au-travail-covid-longue-milliers-quebecois-symptomes Poor her, because of her disabling limitations, she had to go back to live with her parents at 36...

Here is the help sheet (produced by INESSS*) for the management of post-covid-19 conditions on fatigue and PEM, for health professionals in Quebec (Province of Canada). The information even mentions ME : https://www.inesss.qc.ca/fileadmin/doc/INESSS/COVID-19/Fiche_Covid_Fatigue_2022VF.pdf “...

True. Because how can we hope to adapt better to a difficult situation without seeing the reality as it is? One cannot adapt to a chimera, even if you pursue it and desire it with all your might. Sooner or later, the test of reality will strike (and we know it so well with ME). For my part, I...

The AQEM (Quebec Association for Myalgic Encephalomyelitis) announces on its website : " Please note that the Quebec Ombudsman has decided to open a collective main file concerning the lack of adequate health and social services for people with myalgic encephalomyelitis. We will try to...

I appreciate you summarizing and explaining the main problems with this unproven theory. Thank you @Snow Leopard.

Without having access to the article, I have the impression that it is still connected to the good old psychoanalytic theory explaining the conversion disorder (replaced by FND in DSM-5), obviously expressed with new words and " including "a bit of contemporary biosocial. In short, from their...

Sorry, but these people are dangerous to me, because they demonstrate a staggering lack of ethics. Wanting to exclude contacts between researchers and groups of patients, it is to completely cut oneself off from the human reality of the disease and to consider the patient only as an object. They...

Note: the previous summary is from the " World Physiotherapy " * which is included in the document Rehabilitation of clients with Post Covid-19 condition (long COVID) from the Canadian Physiotherapy Association. This last doc. can be viewed in full here...

Here is what the Canadian Physiotherapy Association promoted about PESE in people with Long Covid: https://world.physio/sites/default/files/2021-06/WPTD2021-InfoSheet3-Fatigue-and-PESE-Final-A4-v1.pdf

Pressing for pwme(s) to be a clientele also included in future clinics for Lyme disease and long COVID, the AQEM (Quebec Association for Myalgic Encephalomyelitis) has decided to send a letter of reminder to the Minister of Health of the Province ...

Extract from the letter written by AQEM (pwme association) : The " head start ", to which AQEM refers in its letter to the Minister of Health, is I believe to have alerted and informed early about the possible PEM of long-COVID patients. I think that they were in contact with Simon Décary...

From the article: *AQEM : Association québécoise de l'encéphalomyélite myalgique Nevertheless, there still seems to be hope that ME will eventually be included in these clinics as well : However, what medical support or "treatment" will be offered ? No idea and it will certainly be to...

About alexithymia : " The concept itself is debated and does not appear in international nosographic classifications." https://fr.wikipedia.org/wiki/Alexithymie Thus, alexithymia isn't even in the DSM-5, the bible of psychiatrists. It is one of many concepts from psychoanalysis and...

I know that in any profession there are good professionals, conscientious, honest and endowed with common sense. Unfortunately, over the course of ME's history, pwme have suffered so much from the pernicious BPS and psychosomatic views of psychiatry and psychology, that my spontaneous answer to...

I'm so sorry for you, @TigerLilea. :emoji_crying_cat_face: I sincerely hope it gets better for you.:emoji_blossom: In fact, I know that we can't really predict the reaction that our body will have, it's just that I was taking a chance.

Yippee! :angel: I'm relieved, because 24 hours later after receiving my 4th vaccine, I only have a sore arm. So nothing compared to my 3rd (Moderna) whose effects were so painful as I previously testified in this thread. This time I was able to choose and "jumped" on Pfizer.

Exactly. In short, these people look at patients as objects not subjects in their own right. To them, we are mind, emotional and even sensory misfits (and what else?!) Poor us, without too much intelligence, almost incapable of thinking by ourselves and coping properly. We have a urgent need for...

@Chris, would it be possible to have the internet link or the reference ? :)

@mango, that's exactly my fear : that Walitt succeeds in putting "psychosocial" in the article to be published... I hope I'm wrong.

This whole ideology that " ME is in the head ", has persecuted the pwme community for decades and certainly contributed to the suicide of some... this is beyond doubt in my mind and deeply outrages me, while breaking my heart every time. Based on their own false beliefs about ME, these people...