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  1. Lilas

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Thank you for your excellent work, @dave30th. I can't imagine where we would be without your indispensable contribution. Although inflation and its impacts are felt everywhere, here it is not as bad as in some countries. So, I made a donation yesterday and will make another later. :)
  2. Lilas

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Also, I looked up his name in the CPSO (College of Physicians and Surgeons of Ontario) registry, his name is not listed. https://www.cpso.on.ca/en
  3. Lilas

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    No, a chiropractor has a professional doctorate in his specialty, can be called Doctor but is not a physician. Here is a summary of Jason Busse's academic background. It seems that he is not a MD, although he holds doctorates. https://ca.linkedin.com/in/jason-busse
  4. Lilas

    News from Scandinavia

    " The Dynamic Neural Retraining System™ is a drug-free, self-directed program that uses the principles of neuroplasticity to help reverse limbic system impairment in the brain, and to regulate a maladapted stress response involved with many chronic illnesses such as Long Covid, Chronic Fatigue...
  5. Lilas

    Letter to BMJ: "Medical gaslighting: to say that invoking psychological symptoms is equivalent to dismissal is reductionist", Michael Sharpe

    Sorry to make a little diversion, but I also found the article very good. It focuses mainly on brain fog, among other things its understudied and inappropriately tested nature, its devastating impacts at the professional level, the disbelief of the medical profession... I recognized myself so...
  6. Lilas

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    It dismays and saddens me at the same time that even OMF flirts with BPS... Type A personality, no but is that a joke ?! It's not even a reliable concept. And that's what happens when you try too hard to theorize, you drift away from reality. By wanting too much to extrapolate what remains vague...
  7. Lilas

    Landmark trial of NHS staff by King’s College London reveals promising solution to improve mental health

    In case anyone wants to read the full article, Wessely is one of the authors... Here is a link
  8. Lilas

    Covid-19 vaccines and vaccinations

    Health Canada approves Moderna vaccine against Omicron variant https://ici.radio-canada.ca/nouvelle/1909812/canada-covid-19-varinat-omicron-vaccin (September 1, 2022 - French) . * All excerpts are translations
  9. Lilas

    The utter stupidity of questionnaires as tools for diagnosis. A lighthearted look at some questionnaires misused in ME/CFS research

    First of all, making a diagnosis is a professional act that no questionnaire alone can ever replace, contrary to what can sometimes be perniciously implied by the title or the conclusion of a "research". In my life, I try to look for the facts, the reality, the truth. So these " Tests "...
  10. Lilas

    Differences of MUS among patients of different ages and sexes in the psychological clinic of a general hospital and the..., 2022, Zhang et al

    ...and of course these Chinese psychosomatic authors used the disastrous Patient Health Questionnaire 15 ( PHQ-15) to diagnose MUS. Like the trawl (net) of a large trawler, which dredges and picks up everything and anything indiscriminately, while damaging habitats and organisms at the bottom of...
  11. Lilas

    News from Canada

    A new federal task force on Long Covid is set up in Canada. In a radio interview (Quebec- in French), Dr. André Veillette, immunologist (IRCM), explains that this working group will seek to assess "what we know (about LC), do not know and the relevant questions to pose ". He affirms that it will...
  12. Lilas

    News from Canada

    Whether one is for or against medical assistance in dying, offering it as an option because there is a lack of resources or access to appropriate care and support is, in my view, an unethical and inhumane aberration. This outrages me more than I can express...my worst fears are confirmed. This...
  13. Lilas

    Long Covid in the media and social media 2022

    Article on Long Covid published in the "Le Nouvelliste", newspaper of one of the main cities of the Province of Quebec (Canada). The people interviewed describe well what it is like to live with LC, the major impacts on life and the little information, help and support from the health system and...
  14. Lilas

    Neurasthenia: Unexplained Tiredness: Exploring your mind blog: Spain based.

    Indeed, what an odious lie at their convenience ! Here is what the IOM explicitly says, for exemple in the summary and then on p.222:
  15. Lilas

    In Schizophrenia, Chronic Fatigue Syndrome- and Fibromyalgia-Like Symptoms are Driven by Breakdown of the Paracellular Pathway..., 2022, Maes et al

    According to the preprint version, this Fibromyalgia and Chronic Fatigue Syndrome Rating scale (FF) is just a mixture of symptoms from both FM and CFS conditions, without PEM. Here is how this test was used to obtain the FF physiosomatic score (the authors kept only the "somatic" items, but...
  16. Lilas

    The Madness of Medically Unexplained Symptoms, 2021, Jenny van der Palen

    Certainly, the author Jenny van der Palen is not without knowing the situation of ME… : " Most publicly, patients with ME/CFS – a denomination reflective of dissent – have been maligned for resisting a biopsychosocial framework for their illness in favor of a biomedical one. [26] Historically...
  17. Lilas

    USA university 'investigating the associations between psychiatric internalizing disorders and functional disorders [CFS, FM, IBS]', 2022

    For those interested, here is what is generally meant by this regrouping of " Internalizing disorders (ID) ", according to DSM-5 : (Dimensional Approach to Diagnosis, Introduction, DSM-5) More specifically, these disorders can be: (The DSM‐5: Classification and criteria changes- World...
  18. Lilas

    Sound sensitivity

    Dear Wyva, I hope it gets better for you. :hug: As far as I am concerned, my noise intolerance appeared at the same time as ME. I am hypersensitive to the point that I constantly wear earplugs, day and night (except in the shower !). I even have nude earplugs that are smaller and more discreet...
  19. Lilas

    News from Canada

    Oh Lord... but what kind of society do we live in, where access to adequate basic resources and supports becomes more difficult than access to assisted dying ? It's so unfair and horribly sad... This is exactly the kind of lacuna that I feared with this law of Medical Assistance in Dying...
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