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I will be there in person

This is an oversimplification and misrepresentation of what I’ve posted on this thread.

I am effectively in the same shoes so I think I know what the battle is like. My ME has steadily worsened to the point where since last summer I’ve had to eat a very strict (< 20-25 carbs/day) ketogenic diet every day in order to not be house and mostly bedbound. In addition to that, because...

Who’s picking on people? I don’t see where I’m actually doing that in this thread. I’m simply stating two things: Humanity will likely not effectively treat obesity, diabetes, cardiovascular disease, metabolic syndrome, NAFLD, i.e. lifestyle diseases without putting crucial lifestyle changes...

Like others, at the beginning of ME I had hypersomnia followed by insomnia to this day caused by a strong wired-but-tired feeling at night. I also very often get this intense abdominal/gut irritation feeling and itching in my psoriasis areas only during sleep time at night. It will constantly...

Do you all know that there is an effective treatment for type 2 diabetes? In children, in adults, in everybody, it will reverse the disease and put it into remission. While for decades the medical-industrial complex has told the the public that type 2 diabetes was irreversible and could only...

It’s still lifestyle and this is all still cherry picking. Sure it’s not the whole story, but even the top of your article admits lifestyle is effectively the whole story in the vast majority of people. They are just trying to shed light on other factors that play a role in specific groups...

@svetoslav80 I’m seriously wondering why you are taking antidepressants, they will do nothing for your ME and will potentially make it worse. SSRIs and SNRIs amp you up a lot and therefore require your brain to use more energy which will just make you fatigued and crash faster and harder. Sorry...

Following up after another week. I was ME symptom free for 3 days maybe even 4 days, as you know it was quite hard to delineate how long because of the cold symptoms and how some overlap with ME symptoms. My symptoms only slowly creeped back, and not all of them at the same time. I still feel...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220254/ Very interesting paper which has identified MYSM1, a part of the ubiquitin system that acts as a molecular switch to deactivate the innate immune system and has the ability to prevent certain diseases caused by an excessive activation of the...

I’ve not had blood gases measured but CMP probably 30 times and electrolytes measured there were always normal. I’m guessing CMP won’t always reveal acidosis but thought at least one electrolyte would be off.

I’ve never had any associated breathing problems like forgetting to breathe, catching my breath, gasping, etc. Since I got ME my respiratory rate just want way down.

One ME symptom I’ve had since I fell ill is my breathing rate is significantly slower than normal and than I used to breathe before falling ill. I’ve not mentioned it before in a forum post but had been meaning to for a long time though kept forgetting. Has anyone else noticed this symptom? I...

I believe you’ve misunderstood and misinterpreted my main points. I said I don't believe NASH should be getting $35 billion while ME gets next to nothing, not that NASH shouldn't get funded. I said many, not all, people in America just want pills to solve their health issues and want to do...

I think you failed to read the full details of this review. A significant percentage of patients across all procedure types required reoperations/revisions for all the studies that reported it. This means that they gained weight back and needed to go back under the knife more than once and...

You provide zero evidence for that statement. Where’s your evidence that NASH and NAFLD are not predominantly lifestyle diseases? Diseases that were virtually non-existent since the dawn of humanity until the 1980s. And you are comparing this to ME? Second I’m not doing a “blame the victim”...

@NelliePledge please when you have a chance read this article https://www.cnn.com/2019/01/08/health/cardiologist-statin-cholesterol-mission/index.html As a society we are wasting our time and billions of dollars of money if we think we are going to truly help people with NASH, NAFLD, obesity...

Could be. I just want to be clear and I hope I wrote it correctly I do not think obesity is 100% lack of self control. Part genetics, part socioeconomic, part food industry, part government, part lifestyle and self control. That’s what I meant by some shared responsibility.

Absolutely, I didn’t say we should spend $0 on NASH, but it’s frustrating that we can’t even get $20 million per year on ME and NASH is going to get $30 billion over time. It’s insane

This is the U.S. and for those of us who grew up here we know it’s a very harsh and unforgiving place. You have to be willing to go through hell and work your ass off and make sometimes impossible choices for your health or you will be blamed and it sucks but the world isn’t fair. It just...