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I'm sorry it's not working for you. If you have the energy can you please try a two finger click (or right click) on the link in my original post and then click on "Open Link in Incognito Window" and see if that works for you?

Think it may have been briefly behind a paywall. As well the Globe and Mail does have a monthly limit to free articles so could also be clicking on it a few times. Try clicking on the link in the original post and opening in an Incognito or Private Browsing window. Let me know if it doesn't work?

Thanks Hutan. Another aspect of multiple members of a family becoming ill with ME is that being aware of the symptoms and presentation of ME results in a much earlier diagnosis and an opportunity for researchers to study the earliest stages. When Nadine and Hanna became ill I reached out to...

I'd seen the term used a few times and it caught my eye. After spending some time unsuccessfully trying to figure out what the letters stood for a while ago I asked my 30-something year old son who gave me an explanation that meshes with both rvallee's & Kitty's.

Thank you rvallee and to all the other kind commenters. I have to admit I posted the article here with some trepidation thinking it might be torn to threads. Will pass your comments on to Nadine. I'll take a teeny bit of credit for the facts as her ahem "research assistant" So asking from the...

Thanks dreampop. Yes, definitely. Interestingly, or more accurately sadly, my older daughter's ME started at the same age as I did and Nadine 2 years earlier. My son became ill at 15 and my brother, who isn't mentioned in the article, in his early 20's. Dr Alain Moreau's team at the University...

A brave & thoughtful story my daughter Nadine wrote about her recent diagnosis with ME, my family's history with the disease, COVID long-haulers and how it's time to start paying attention to those who suffer from chronic illnesses we don't yet understand. "How did my siblings and I collapse...

Wondering if we took lorazepam very occasionally in order to do something essential that would usually result in 2 days PEM if with lorazepam we'd have significantly less PEM? I'm asking as I haven't read about Whitney having a bad reaction after his sessions with lorazepam?

I took 4.5 mg at night for a couple of years. Thought it was helping with sleep, perhaps mood and restless legs. When I went off it a few months ago to find out I did have more discomfort in my legs for about a week or two but then went back to normal. So I'd say if it did help for a while it...

I was prescribed low dose hydrocortisone by a naturopath as per William Jefferies book. Took it for a few months. Didn't seem to have any significant (or even insignificant) effect on my energy or other symptoms but I went from having no stomach problems to being hardly able to eat anything...