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  1. Helene

    Book: A Still Life: A Memoir, 2021, Josie George

    Beautifully written article. Looking forward to reading the book. https://www.thebookseller.com/news/bloomsbury-scoops-wise-memoir-george-945206
  2. Helene

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    The book should be required reading for anyone who thinks exercise and positive thinking are the way out of ME - looking at you Paul Garner & BPS crew. Jamison Hill is a bodybuilder/fitness fanatic who just won't quit trying to overcome ME by ignoring his illness and exercising, until he is...
  3. Helene

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Aha - seems you can just buy it online directly from Inkshares, the publisher. Here's their reply: Inkshares <hello@inkshares.com> 10:53 AM (47 minutes ago) Hi Helen, She can order it directly from Inkshares here: https://www.inkshares.com/books/when-force-meets-fate-a-memoir-of-strength...
  4. Helene

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    There's got to be a way. I've sent an email to Inkshares, the publisher to see what they suggest. In the meantime, does anyone else have a suggestion for Mango on how to access this ebook?
  5. Helene

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Hi Mango - I'm in Canada and preordered the e-book about a year ago when Jamison needed a certain number of orders to get it published. Downloaded in EPUB and read it on my laptop. Here's a list of places the various formats (e-book, audible & hard copy) are available: US: Amazon, Apple...
  6. Helene

    Book: When Force Meets Fate by Jamison Hill, published January 2021

    Got my e-book last week & read it. Best description of the experience of ME that I've read.
  7. Helene

    Trisha Greenhalgh on ME/CFS and Long Covid

    Like ScottTriGuy I also asked that the webinar not be posted or alternately be posted with the Q & A edited out. In addition I requested that the webinar organizers, Canadian Institute of Health Research who BTW support Alain Moreau's work, send an email to webinar participants clarifying their...
  8. Helene

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Well, my recollection is she said that she thought PACE was good (this may not have been the word she used but if not it's close) research. Next she made a comment about a prominent physician with long-COVID who initially was hesitant to exercise and wasn't recovering but then began to exercise...
  9. Helene

    Open Medicine Foundation (OMF)

    I share this concern but continue to donate as, after going around in mental circles, this still seems like the best place for me to contribute financially. Other suggestions more than welcome? I am in Canada. Edited to add - One of my considerations is that OMF supports researchers in Sweden...
  10. Helene

    Trisha Greenhalgh on ME/CFS and Long Covid

    Was a webinar in a series put on by the Canadian Institute of Health Research this morning. Will post when it's up. Confusing as this is the organization that is supportive of Dr Alain Moreau's work. ScottTriGuy can you add to this?
  11. Helene

    Trisha Greenhalgh on ME/CFS and Long Covid

    Split from Possibility of ME or PVFS after COVID-19, Long Covid Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more. Blood still boiling. Basically said PACE was...
  12. Helene

    USA: Congress Approves Over a Billion Dollars to Study Covid-19

    Just want to say I very much appreciate this thread as I was first excited about the Solve ME announcement and then the doubt set in but hadn't seen the above discussion. Will be watching for developments. Grateful that the long-haulers will be pushing on this. Agree with rvallee that we'll all...
  13. Helene

    Keeping Up Appearances - How to look good while feeling ill

    I'm totally sold on the no-poo hair care method! Was finding washing my hair too tiring on my arms so kept putting it off longer and longer between washes. Then last January - that's almost a year ago - I stopped washing it altogether. I rinse it by lying down in the bath (usually with a tiny...
  14. Helene

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sometimes I wish there was a "Really like" button.
  15. Helene

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Investigative article in Vox on Long Covid experiences of long haulers and doctors as well as some research. Bit about relationship to ME below in quote. Quoted researcher Madeline Lancaster is a biologist and the group leader at the MRC Laboratory of Molecular Biology in Cambridge, UK...
  16. Helene

    ME researcher Jonas Bergquist - interviews, talks

    Just listened. Interesting, good update on his current research and his thoughts on other ME developments, and calm easy to listen to this kind, knowledgable and dedicated researcher.
  17. Helene

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

    Yes- I believe they tested at least some of the patients in their homes. The nurse working on the study was willing to come from Montreal to a home in Ottawa, about a two hours drive, to test our family but we didn't end up doing it due to the logistical problems of getting family members from...
  18. Helene

    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    Maureen Hanson spoke first and stressed the dangers and risk of permanent damage from exercise on people with ME. Then in Ian Lipkin's presentation he said he hadn't recovered from COVID-19 but that exercising with a personal trainer had helped him a lot. This was weird as given it was an ME &...
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