Search results

"I talk to my sister. Her personal experience of ME really helps, and she coaches with practical management of chronic fatigue." What? His sister has personal experience with ME and he still doesn't get it?

Yes! This resonates with my family's experience - we're now up to 6 people with ME among my siblings & my children. And another key related question is the relationship (or lack of relationship) between post viral fatigue and ME. Unrelated but early stage of ME present similarly to PVF...

This may be beside the point but I am truly amazed that after a mere 6 months Garner "wondered if he would ever get better". I may be a bit thick but it was only after 30 years of ME that it occurred to me that I might not recover.

And I wonder if we might learn something about ME through the screening?

I'd love to read this. Has anyone found it available in Canada or the US? Shipping from the UK tends to be a bit steep.

Done

A wonderfully written piece @Michelle . Loved it.

I concur that it's difficult to diagnose ME if there's another diagnosis that has overlapping symptoms but has a reliable test. A member of my extended family has Crohn's disease where his symptoms are significantly more incapacitating than his specialists expect from his physical markers. We've...

Oh for a biomarker!

Thanks @Wyva The article explains what the ME/CFS community has been trying to shout since the beginning of the Covid-19 epidemic. This! While there’s no doubt long Covid is a real condition worthy of diagnosis and treatment, “this isn’t unique to Covid,” Akiko Iwasaki, an immunologist at the...

Looks like he got a second wind in 2020

My impression was the article had some excellent parts but also a lot about the success of simple breath works as a treatment. Not sure what to make of it?

That's wonderful. I'm very happy about that!

I'm wondering if there's any thought of S4ME joining the "Long Covid Alliance"? So much knowledge to offer.

Here's what I hear from Ron's presentation in the panel. They're working on developing a new technology which can be easily and inexpensively used in any lab that clearly shows, using only a drop of blood, the presence of an illness. If the nanoneedle is medically accepted then when a person...

I posted this on the thread "A nanoelectronics blood-based diagnostic marker for ME/CFS ....." as it clarifies a point we've been discussing but it belongs on this thread too. It's a panel discussion with Ron Davis, Ami Mac & Michael Snyder titled "The Crisis: Post Covid Symptoms with Stanford...

Here's a panel discussion with Ron Davis, Ami Mac & Michael Snyder titled "The Crisis: Post Covid Symptoms with Stanford University" that speaks to the question above. Ron explains that the nanoneedle is of value as it can be used to differentiate "healthy" and "unhealthy" people even if it...

Yes, he had made some improvement but remained very sick at the end of the book. In that case it wouldn't be required reading but never-the-less would likely be an interesting book for someone deeply involved in ME.

I'm embarrassed he's Canadian.

Excellent. Glad it worked out.