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I wonder how adrenaline fits in. Or is this encompassed in mood? I find adrenaline can completely change my perception of how ill I am. Earlier in my illness I felt fine in stressful situations, such as bringing a child to the hospital after a fall for stitches, to the extend I wondered if I...

Oh good! I searched a few days ago to see if this report had been discussed on S4ME. Thinking there are going to be some questions on what they based the outcomes. Note that the 372 patients evaluations were spread out over a 20 year period. Just maybe helps explain why some people with ME...

Just an FYI - the presentations are being recorded and will be available later.

Registered & will take in some of the ME related sessions. No registration fee or issue registering as a patient.

Done.

This brilliant essay from Electric Lit is a gem. It's affirming, easy to read, longish and mentions ME & Jen Brea. WARNING - I fell in love with the author. You just might too. https://electricliterature.com/why-doctors-like-me-need-to-read-chronic-illness-memoirs/ Why Doctors...

Hi @rvallee Don't know if you've already checked the ME & CFS Canada FB group? There are a number of docs on disability applications in the files section and lots of discussions & tips if you search the group. Also several meeps in my family have experience applying to DTC and CPPD. If you'd...

A concerning article as it casts doubt on the existence and seriousness of long COVID. If you can get by the bad taste the cynicism leaves, what is fascinating is the description of the tremendous work of of long COVID advocates.

This looks like good news @leokitten Please keep us updated!

@leokitten Just wanted to say I'm so sorry that the sleep improvements haven't lasted for you and very much hope you maintain the other improvements. Also want to say that I have appreciated your openness is sharing your experiences. Several of my family members with ME, including me, are...

This is a brilliant piece. Read to the end, the final paragraph is sublime! Her experience with a plethora of well meaning advice is so familiar. What was unfamiliar was the medical concern and urgency. Heck, she even gets treatment!

Just watched. Kelli, is a previously healthy & active physiotherapist with long covid. She was dismissed from a long covid clinic with little help and has also seen numerous specialists with little effect on her illness. She has now been diagnosed with ME and explains how we've been ignored...

This article speaks the writer's truth. It is thought provoking, beautifully written and has a powerful effect on readers. What more could we ask for? Painful that it is, articles like this have the potential to change society's perception and treatment of people with ME. Who could read this...

CoQ10 was the very first cure suggested to me by friends when my ME started in 1988.

I too had this problem for about a decade and gave up trying. Then I got a Polar 370 watch for heart rate monitoring a couple of years ago and have worn it daily without any problems. Only metal - skin contact is the clasp which doesn't bother me. Edit - typo

Thanks @JemPD Changed to eminent :) If any-one wants to use this let me know and I can do a full transcript easily. It's at least twice as long as I quoted. But I think using the actual video would be far more effective as it's the passion that Monbiot himself shows that is super powerful...

Monbiot's birds eye overview of ME is one of the passionate presentations I've seen! His own 14-week bout of long covid and having two friends with ME have given Monbiot a huge passion for our dire situation. Could we use this portion of the interview to promote awareness? Some quotes...

Aha! - that makes sense, or doesn't make sense - but it's now clear :) Thank you @Mithriel

I'm confused on the meaning of the "functional" label in medicine and having been wanting to bring this up for a while. It seems that FND is commonly used as a synonym for conversion disorder yet I've also seen it defined as meaning simply that it's as yet medically unexplained - which actually...

Just watched on YouTube and thought it was well done. The people with ME in the film gave a realistic impression of living with ME and the interviews with several researchers generally gave the overall impression that we need a heck of a lot more focus on ME to get anywhere. Good to see...