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Good piece. Thanks for posting @Mij The link doesn't work for me though. Think htm should be html. This one works for me. Corrected. https://www.thestar.com/opinion/contributors/2022/02/27/thousands-of-canadians-may-have-acquired-long-term-impairment-from-covid-they-need-support.html

Agreed. My reaction after reading Part 1 & 2 was I'd hate to hear his opinion on ME. Soon, my curiosity getting the best of me, I googled Philip Hickey & ME & CFS Nothing. Phew.

On the topic of the Russian Flu, this article came out in The Tyee, a Canadian progressive online news magazine, last week. Is Our Pandemic the Ghost of the 1889 Russian Flu? The ‘dreaded disease’ that claimed 1.5 million looks a lot like COVID-19, including the long-term threat posed by...

Thank you so much for your kind comment & good wishes @Hutan! I'll pass this on to Nadine.

So in case anyone is interested and able to watch, here's the video of my daughter, Nadine Sander-Green's interview with Solve M.E. yesterday. She talks about our family's journey with ME and the importance of storytelling in raising awareness of our historically neglected illness. Edited to...

Does anyone know anything about this study listed in the ICanCME site above? Has it started? "Another study headed by Dr. Alain Moreau in collaboration with Dr. Ron Davis is searching for endogenous retroviruses in a Quebec cohort of people with severe ME/CFS."

Done. This one is very easy to sign.

Haven't been following this thread but thought it might be worthwhile to post a positive experience. Had a Moderna booster two days ago and grateful to be back or close to back to baseline today. Far lighter reaction than my 2nd vac of the same. Very sorry and best wishes for improvement soon...

@Jonathan Edwards Very much hope you're feeling better soon and still can enjoy Christmas a little bit.

WHAT???? I'm sorry you're crashed @Joeblow604. Hope you get some good rest. When you're feeling up to it I'd be interested to know if this statement is recorded and/or available online?

Thank you @Hutan The thread does give me some background. I remember excitedly watching Dr Nacul's presentation and following this got my family doctor to send in a referral to the CCDP. I thought by the time I got in there might be better treatment. It's been over two years and I haven't heard...

Dr Arseneau is one of the doctors that sees ME patients at the BC Women's Hospital Complex Chronic Diseases Program in Vancouver. This is the only specialized clinic offered by the BC government for people with ME and going through the program can be a requirement of receiving disability...

This is something I've been wondering about. This isn't in relation to vaccines but is there any information on how people with ME who catch Covid fare in comparison to people who are healthy previous to catching Covid. I guess there would be so many factors involved it would be difficult to...

Thank you @Hutan (in the Intramural study) This was confusing but my understanding was that they weren't all necessarily misdiagnosed. Think people were also taken out of the study if it was found that they had another illness or condition in addition to ME. As mentioned above Nath said that...

That is a simply lovely interview. Two bright young writers who have been living with a chronic illness since childhood and deal with it with thoughtful maturity. Thank you @Tia !

Done & passed on to a relative in Germany. She told me she had already seen it & shared it on social media even though she's not part of an ME community so it's definitely has good visibility in Germany!

Just got the ebook. Will report after reading it. For anyone who is able to read e-books it's available at reduced price of $10. through amazon.ca

Yes - I can see reading it that way too.

Here's where she talks about CFS & fatigue. "Long COVID shares similarities to chronic fatigue syndrome, and some patients infected during the SARS outbreak almost two decades ago also developed longer-term side effects. But, according to the Ontario Science Table report, Post COVID-19...

Yesterday's Globe and Mail had an article on Long COVID focusing on the importance of vaccinations in reducing risk of Long COVID. This is good but there are some major problems with the article, the easiest to fix is that the it equates chronic fatigue syndrome with fatigue - not a multi system...