Search results

Kristaps Porzingis is struggling every few games: https://nitter.net/BTRowland/status/1987218882776694852#m

What about pregnancy? I remember a thread where some members reported remission during pregnancy.

From their Facebook page: https://m.facebook.com/61579371603061/ NOK 250,000 is only £18.8k/USD 24.5k. I lost track of the total amount. Back in September they were NOK 5.5m short? So now it's just NOK 1.75m and then the trial is fully funded or am I missing something?

No and no. Habets is all over the place and I wouldn't trust anything he says.

But that's exactly what's happening at the moment. Each GP or specialist I've spoken to think fatigue clinics are staffed by clinicians. I've had doctors assume they do specific blood tests or the multidisciplinary team includes immunologists or rheumatologists. That belief not going to change...

I don't think so. Even in other countries protests are relatively small as we have to rely on allies and carers, but there is some awareness. I have seen nothing of the sort in the UK. Daratumumab (if it works) can only be prescribed by specialists and they'll tell you they will only prescribe...

The "ME/CFS Call 2026 – Fellowships" was published on October 14, 2025. This call is aimed at early career researchers in the field of ME/CFS who wish to complete a six-month research stay at a research institution in Vienna or abroad. The ME/CFS Fellowship Program aims to strengthen the ME/CFS...

Weirdly, AIM-ME has gained no traction on social media. German patients are normally up in arms about lack of government funding, but now that funding is available and a researcher is blocking progress, everyone's quiet. Maybe people missed the announcement?

Why don't they start with AIM-ME asap? Is there an advantage to doing everything at the same time in terms of resources or recruitment?

mljames@stanford.edu From https://med.stanford.edu/jameslab/team.html

https://www.omf.ngo/bioquest-update/

Nope.

Higher in what hierarchy? Because we know more about it, it's a superior disease? You're not making any sense. What even are Sjogren's giving symptoms of PEM? If they have PEM, they have ME/CFs whether or not they've been diagnosed with it.

And PEM isn't fatigue. If your friends have true PEM, they also have ME/CFS. If fatigue is their main issue, that's a Sjogren's thing I guess.

Sjogren's doesn't have PEM. Who cares if some other symptoms overlap? You can be deficient in iron or B12 which can result in fatigue, but that doesn't mean you have ME/CFS or Sjogrens.

They've updated their website: https://www.me-foreningen.no/om-oss/stott-me-foreningen/me-fondet/english-me-fund/ And claim this: I'm confused about the lactic acid statement? Iirc we don't have evidence for that.

Where is the survey? All I see is a link to sign up for a reminder.

HRV just tells me whether or not I slept well. Which I know anyway so don't need a value for that. It doesn't correlate with steps or symptom severity at all.

If this was mainly for POTS only some patients presumably happened to have PEM. Unless they screened for that specifically, I don't think the data is very interesting. ChatGPT says the drug reduces IgG levels which is interesting though.

Curious if Fluge has responded yet?