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I agree. Crashing out of the workforce, using my savings because I probably won't be eligible for disability benefits, losing my independence and facing life-long poverty is more stressful than some random deadlines or difficult managers at work. I think for now the financial impact is the most...

I wouldn't describe myself as mild because I'm housebound and even small activities can trigger PEM, but every day is a good day in terms of not having symptoms when I'm not in PEM.

Does feeling epic mean no baseline symptoms or no PEM regardless of exertion or both?

My immediate PEM symptoms change every few weeks, but at the moment I get body chills, a sore throat and painful legs. If I have a headache the next day, I definitely overdid it, but I count the immediate and the delayed onset as PEM. I don't have symptoms when I'm not in PEM apart from...

Abstract In a subset of children and adolescents, SARS-CoV-2 infection induces a severe acute hyperinflammatory shock1 termed multisystem inflammatory syndrome in children (MIS-C) at four to eight weeks after infection. MIS-C is characterized by a specific T cell expansion2 and systemic...

@DMissa does home visits in Australia.

This happened to me a few weeks after I recovered from covid. Nothing was found and I never made the connection to long covid because I didn't know it was a thing in 2020.

I'm curious about this, too! Even if it's all woo woo, it could make for some nice mocktails!

Allegedly it had around 100,000 readers as of 4 years ago. But this isn't an actual newspaper with editorial staff. https://medienwoche.ch/2021/05/20/gibt-es-eine-mittellaendische-zeitung/

Wasn't there a mouse model for ME/CFS? Or is it not valid? What if "something in the blood" successfully replicates previous results? Maybe we can induce ME/CFS in rats somehow, take healthy control rats and do immunofluorescent experiments. How did they get "unhealthy" rats for their experiments?

Why would it be a nightmare?

Does that mean nothing would show up in DecodeME?

I have found some contact details: https://www.zi-mannheim.de/en/research/people/person/1151.html https://www.uni-kiel.de/en/person/goeder-robert-5898 https://publica.fraunhofer.de/entities/person/953f8f0e-f5a0-4db5-915a-8f966d2fcb1a

This one: https://institute-genetics-cancer.ed.ac.uk/research/support-our-research/me-cfs-research

Follow up question: if I remember correctly Audrey's position is only funded until the end of the year. Has additional funding been secured yet?

I don't have OI, but I work mostly from bed to keep my heart rate low. I get PEM from cognitive exertion surprisingly quickly, but only if I'm working on something unfamiliar where I have to think quite hard. Routine tasks are not a problem. I also monitor my heart rate and I get PEM even if it...

The modern day equivalent of donating small change is Give As You Live if you do online shopping. ME Research UK can be supported through them.