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I think the Evening Standard is missing and was mentioned on this thread. https://www.standard.co.uk/news/health/people-university-of-edinburgh-european-medical-research-council-b1241813.html

Thanks @MSEsperanza! I implemented your suggestions. I have a tendency to write unnecessarily long sentences with many sub-clauses, but it's a good idea to split them instead. I slightly changed one sentence to avoid repeating "Reize": "Viele Erkrankte vertragen normale Geräusch-, Licht-...

This is a draft of the first fact sheet translated into German. Looking forward to your feedback! Fact Sheet 1 Was ist ME/CFS? Übersicht - ME/CFS (Myalgische Enzephalomyelitis/Chronisches Fatigue Syndrom) ist eine Krankheit, die das Leben der Betroffenen erheblich, oft schwerwiegend und in...

I have the impression they're raising a lot of money fairly quickly for such a new organisation. From what I've been reading here German ME/CFS research doesn't look promising, but they have an international scientific advisory board with Fluge and Mella among others so hopefully the funds find...

ME/CFS Research Foundation 2025 summer report: https://mecfs-research.org/en/2025summer-report/ 1. Research projects: - MCFC Laboratory for the preparation of biosamples in the context of ME/CFS research - ME/CFS Biobank in which biosamples from patients are stored - Research project Healthy...

Would you consider making it open source? You'd still have to review PRs, but it could be an option.

The same authors published this ME/CFS book: https://www.s4me.info/threads/me-cfs-springer-protocols.44162/

Does that really happen? Because it would mean dara is not an option for anyone who got sick pre-covid.

I've never paid attention to it so I'd say no.

I get daytime sleepiness, too. The important thing is that I HAVE to fall asleep to recover. If I just rest for hours on end, the sleepiness doesn't go away. But if I fall asleep, and usually I only fall asleep for 5 minutes, I wake up and it's like my system has been reset and the sleepiness is...

Now recruiting participants: The MIRACLE research project investigates immunological, inflammatory, and metabolic pathways in ME/CFS. In this collaborative project between the University Hospital of Marburg (UKGM) and the University Hospital of Regensburg (UKR), a total of 200 patients with...

Don't scare me like that :oops: My prodromal phase symptom cost me my career. It's the main thing that needs to go away.

Abstract This literature review summarizes recent studies on T cell exhaustion and its role in post-acute infection syndromes (PAIS), including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID. It synthesizes the current evidence on how persistent immune dysfunction...

I get a runny nose and painful sinuses when I'm overdoing it and it's a warning signal. I don't get it during PEM.

As someone who had the same question and had to Google: independent or not influenced by existing ideas or assumptions

Is it possible to undergo NK cell therapy to increase the amount of NK cells and then be treated with daratumumab? Random link I skimmed with no knowledge of biology...

Other mabs? That we already have maybe? And if not how long would it take to develop a new one from scratch? Why would it block monoclonals?

My bad, I misunderstood your question then!

We don't have a general confirmed mechanism let alone one for spontaneous remissions. How would anyone develop a drug without a target? My understanding is that dara is a stop gap for some pwME until we have something better.

Is CCI easy to diagnose? It's a popular suspected comorbidity on social media alongside EDS