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Do you think DecodeME will bring in new researchers with new approaches, or that existing groups will change their main focus? And what are some practical ideas to test your hypothesis?

https://www.moment.at/story/fuer-die-aus-dem-leben-ausgesperrten-mecfs-fussball-empty-stands/

I've added the second fact sheet to my original post.

Some recent tweets: Thread 1 Maybe it’s just another day ending in “y” around here but I’ll volunteer we can never do enough to educate health care practitioners about PEM—the thing that breaks all the rules. We simply can never have enough caution and clarity surrounding PEM, particularly how...

From the document: :banghead:

Summary Background Evidence from randomised clinical trials (RCTs) of Janus kinase (JAK) inhibitors—compared with usual care or placebo—in adults treated in hospital for COVID-19 is conflicting. We aimed to evaluate the benefits and harms of JAK inhibitors compared with placebo or usual care and...

I was able to watch it without an account.

Full article now available here: https://web.de/magazine/ratgeber/finanzen-verbraucher/erwerbsminderungsrente-chronisch-kranke-kaempfen-ansprueche-41212350

Thanks everyone. Great to see some engagement! @MSEsperanza @Ravn @Wits_End How about we split it into two sentences? “Ein Rehabilitationsansatz bei ME/CFS ermutigt Betroffene, ihre Aktivitäten im Laufe der Zeit schrittweise zu steigern. Damit soll versucht werden, ihnen zu helfen, zu einem...

I think it's one of the many symptoms that doesn't affect everyone just like some pwME don't experience GI issues or a sore throat. I sometimes have muscle pain when I'm in PEM and it's usually in my neck/shoulders. At the beginning I thought I had slept in a weird position and didn't associate...

Now published: Link

The Yes, same here. He justified it with viewpoint neutrality. The headline is "ME/CFS is not entirely psychosomatic". The head of the DGN then suggests patients should receive home visits from "multidisciplinary teams" including psychologists to rule out depression :rolleyes:

The only article I could find in German media. https://www.it-boltwise.de/genetische-hotspots-bei-me-cfs-neue-erkenntnisse-zur-krankheit.html Martin Ruecker, who normally writes good articles about ME/CFS in Riffreporter, did not like the Times article because it uses words such as "hope" and...

The Straits Times https://www.straitstimes.com/world/europe/uk-scientists-find-genes-linked-with-chronic-fatigue-syndrome

ME Research UK have published an article: https://www.meresearch.org.uk/decodeme-initial-results-published/

And these are all projects currently funded. All of them will conclude next year (links removed) https://www.weandmecfs.org/research/wwtf-und-we-me-foundation-setzen-zeichen-sieben-projekte-zu-me-cfs-erhalten-förderung ME-CFS24-001 Kathryn Hoffmann (Medical University of Vienna) Adult patients...

This is one of the projects they are currently funding: https://www.wwtf.at/funding/programmes/ei/ME-CFS24-002/ Currently, there is no consensus on the genetic foundations of ME/CFS, although its heritability estimated at up to 50%. While a large-scale GWAS is ongoing in a dedicated ME/CFS...

Thanks for the feedback @MSEsperanza! I agree, additional opinions are always welcome. I like this one!

Translated into English from https://www.weandmecfs.org/news/gemeinsam-gegen-me-cfs-we-me-award-unterstützt-forschung-mit-450-000-euro Together Against ME/CFS: WE&ME Award Supports Research with €450,000 With the newly established WE&ME Award, the WE&ME Foundation is providing €450,000 for the...