Search results

  1. H

    Swedish Government: More knowledge is needed to better support people with CFS

    Sorry @mango, the question was rethoric :). The good thing, I think, is that so many newspapers, also smaller local ones publish about ME, and the bad thing then is that all these articles, radio and TV segments can´t be controlled regarding facts. There was a good and rather long TV segment...
  2. H

    Swedish Government: More knowledge is needed to better support people with CFS

    I totally agree, but how to perform that with so many wills and opinions? Until we have solid and unquestionable results from research, I think we have to live with those difficulties. Hopefully quality facts and information will be in majority in media, instead of the BS.
  3. H

    Swedish Government: More knowledge is needed to better support people with CFS

    There is also a great advantage in Sweden compared to most other countries. Lately media, newspapers, radio and TV channels, has covered ME, with a few exceptions, in a very good way.
  4. H

    Swedish Government: More knowledge is needed to better support people with CFS

    I believe a lot of lobbying is needed from PWME this year to increase the base of knowledge. I hope people with Twitter accounts will put pressure on the minister and all institutions involved to avoid the BPS maffia´s taking part in this. Though, I´m grateful to Annika Strandhäll and her...
  5. H

    Nederlands Dans Theater with video dedicated ME-patients everywhere

    So beautiful. Thanks to everyone involved.
  6. H

    Novel antioxidant [MitoQ] makes old blood vessels seem young again

    Sherpa, on the other forum, posted about his benefits from MitoQ.
  7. H

    Are there probiotics that PWME should avoid?

    So sorry, @Pechius, to hear about you crash from Theralac. Or was it from your diet on a lot of rice and butter? I read this article today https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4253991/ and it highlighted how bad carbs and fat (like in a typical Western diet) could be to the microbiome...
  8. H

    News from Scandinavia

    Too sad. What treatments does Stora Sköndal offer? The question is maybe off topic, but I´d just like to get a list with the treatments that they are offering.
  9. H

    News from Scandinavia

    I´m waiting for the day when Dr. Mats Reimers (to be sure that he gets a google alert on this) will have updated his knowledge on ME/CFS. He is surely able to google PubMed and read up on the latest research, if he´d like to. For some reason, he doesn´t want to, and continues to publish articles...
  10. H

    News from Scandinavia

    This week, every day for two hours, the TV programme "Malou after 10" on channel 4 will discuss ticks and tick-borne diseases. The first programme today was very good. Unfortunately it can only be watched in Sweden. https://www.tv4play.se/program/malou-efter-tio/3939310
  11. H

    News from Scandinavia

    A Swedish radio programme about science tells that there is no evidence for CBT or GET in CFS according to new findings after the earlier PACE trial. The programme is considered serious , so happy to hear about the statement in that programme...
  12. H

    Blog: Desperate Scientists, by Lou Corsius

    Very good @Lou Corsius ! "The researchers use outcome values that do not even come near to the outcomes of healthy people." Just one of many excellent points.
  13. H

    News from Scandinavia

    https://magnetevent.se//Event/utmattningssyndrom-och-mecfs---vad-ar-skillnaden--19605/#21286 Edit: Maybe you´d like to write a summary in English? I have too much of brainfog today.
  14. H

    Low-dose Naltrexone articles and experiences

    One of my doc´s who prescribed LDN told that it is genetic if it works well or not, so I guess carefully trying LDN from a low dose (0.5 mg) and very slowly increase is the only way to find out if it´s good for you or not. To minimize the risk for insomnia it should be taken in the morning.
  15. H

    Low-dose Naltrexone articles and experiences

    Here are some well-written articles about LDN by Dr. Jeffrey Dach. No doubt there are many reasons for PWME to try LDN. I´ve been lucky having two doctors suggesting it. http://jeffreydachmd.com/low-dose-naltrexone-ldn-part-one/ http://jeffreydachmd.com/low-dose-naltrexone-ldn-part-2/...
  16. H

    News from Scandinavia

    Happy to see that all publicity in medias about ME/CFS from December last year made Annika Strandhäll, Ministry of Health and Social Affairs, visit the ME-klinik in Stockholm, Sköndal. Thanks Annika Strandhäll. Hoping for more to come for ME-patients. A meeting was also held with the National...
  17. H

    News from Scandinavia

    I just wrote a message to the newspaper. How could they ever publish such an advertisment for a non-scientific "therapy" by an amateur in the medical field. Edit: please don´t give the article any clicks
  18. H

    News from Scandinavia

    Could you give some examples of what he has done? If risky for the patients, it sounds really serious. Edit: There is no sign, as far as I can see on the clinics homepage, that the doctor is considering ME being nothing but a physical disease. Sorry to others, there is too much text to...
  19. H

    News from Scandinavia

    Tonight on Swedish TV2 6.45 pm, the author Karin Alvtegen will be interviewed about her ME in "Fråga Doktorn" (Ask the Doctor).
  20. H

    News from Scandinavia

    I understand, and could have agreed to your concerns in this case as well, but I heard from people involved that it wasn´t the fact this time. There have also been so many segments of really good quality about ME, as you know, so people are now well-informed from what they heard, read and...
Back
Top Bottom