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@rvallee , I totally agree with you that there is no (signs of an) epidemic in Norway. I just translated the headline from the article. I hope that someone, with more energy, wants to sum up the article in English.

ME epidemic among children in Norway . https://www.expressen.se/nyheter/me-epidemi-i-norge-barn-isoleras-och-sondmatas/ Feel free to translate and explore more of this news from a Swedish evening paper.

My test results (sCD14, PGE and Interleukin 8) were abnormal too.

As a side note from the abstract: " Clinically, ME/CFS patients show normal arterial oxygen saturation..." That statement surprised me, but maybe I got it all wrong. What Dr. Cheney told at a IACFS patient conference made more sence to me (page 6): " CFS Patients Are Functionally Hypoxic -...

@Obermann

I was told that the video-recordings, that will be published later, will be of even better quality so probably worth waiting.

It´s probably explained by the fact that COMT- mutations are more common in PWME than in a healthy population. I didn´t dig into this but I trust the late Rich Van Konynenburg who listed SNP´s that are more prevalent in PWME, in his video-recorded talk on the Internet. As the enzyme, which is...

@mango , I´m really sorry for how you are treated. I have no words.

@mango, sorry to hear that. I have no insight in what´s going on in the project regarding the work with the treatment rules, but I hear a lot of positive examples from ME-patients how they have been helped in a very good way lately. As an example I called my GP today as I have an acute issue...

Really? There are a few doctors with a loud voice, but my impression is that more of mainstream doctors know a lot more about ME since media published lots of material on ME during last winter. Thanks for the links. I´ll try to get the e-mail address to someone who is responsible in that group...

Congratulations Prof. Lombardi and your team! It looks like we are getting closer to a treatment if the study will show positive results.

Congratulations Professors @Jonas Blomberg and Anders Rosén! So proud that you and Anders Rosén got the Ramsey award, and also grateful that you are doing research for PWME (people with ME).

Good news @Kalliope . Hopefully the "NIH´s " ( Socialstyrelsens) standards for treatment of ME/CFS in Sweden, that will be published at the end of this year, will push the opening of more specialist clinics.

@jaded I see, although I find the test a bit odd as it is mentioned that a too high dose might cause a muscle weakening in some people. It seems to me as if the dose is highly individual and should be optimized. But Dr. S surely knows what he is doing. Thanks for the article. I´ll read it later...

Thanks, Jade. Did I get it right that the dose used in the trial is 60 mg in a single dose daily? I´m taking Mestinon since some weeks and that would be a very high dose for me. My muscle weakness is gone for about 4 hours after taking 10-15 mg. If I take more than that the typical side...

Might be. Vitamin B2 deficiency is mentioned as a possible cause of dry eyes and light sensitivity. As vit B deficiency was common among PWME in the metabolite test at Stanford, and also in peoples OAT tests, I think we should make sure to have enough of it.

Is this the reason why PWME don´t get cured easily by standard treatments for Lyme infections? https://www.prohealth.com/lyme-disease/library/research-shows-lowered-immune-response-leads-persistent-lyme-disease-symptoms-85030?B1=EM091918L&utm_campaign=Email - Newsletter%2 Full article...

Many, many thanks @Mike Harley for what you are doing to help us. It´s amazing. To others; isn´t there a guy on PR, maybe he is here as well, who lives in Bulgaria? I can´t recall his signature and can´t find him but hopefully anyone can remember him. He has a photo, probably of himself, as an...

@alex3619 , could it be this one?

KDM will give the opening speech at an immunology conference in Madrid, August, 6th with the exciting title : Biomarkers which identify CFS/ME patients The announcement of the conference https://immunology.immunologyconferences.org/ The program...