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Abstract Introduction: People with Long Covid report a wide range of symptoms and inconsistent responses when seeking clinical diagnosis and support. Much of the qualitative research on Long Covid has been based on people attending specialist clinical services or who have accessed support...

My understanding is that caffeine reduces iron absorption?

I read that Andrew Wakefield (ex doctor) did his first feature thriller film in Hollywood in 2024 called Protocol-7, which claims the mumps jab causes serious long-term health issues.

"Long Covid clinical trial helped me return to work" When Sharon Baker tested positive for Covid-19 three and a half years ago, she had little idea it would lead to an 18-day hospital stay and debilitating long-term symptoms. The 64-year-old, from Rothley in Leicestershire, is one of an...

Rapamycin Improves PROMs in Patients With ME/CFS in Early Trial Key Takeaways Rapamycin administration improved PROMs in ME/CFS patients, showing significant enhancements in fatigue, sleep, and orthostatic intolerance over 3 months. The study involved 40 participants, with rapamycin doses up...

A Digital Platform with Activity Tracking for Energy Management Support for Long Covid: A Randomized Control Trial

Medical dictionary meaning of the term 'crash': 1. A colloquial term for a sudden change for the worse in a patient's health. 2. A colloquial term for acute drug withdrawal. This does not describe delayed PEM. I think we need to stay away from the term crash.

I have never been tested for POTS, but I do have OI, and drinking salty broth helps with delayed PEM the next day. The saltiness helps retain fluids because I always feel dehydrated during delayed PEM.

The Sick Times: https://thesicktimes.org/2025/04/08/its-like-torture-the-tilt-table-test-could-be-risky-for-many-people-with-long-covid/ Key points you should know: The tilt table test (TTT), commonly given to diagnose postural orthostatic tachycardia syndrome (POTS), can be dangerous for some...

"Ample evidence suggested that intraoral viral load is correlated with risk of disease transmission, with oral transmission 3-5 orders higher than nasal transmission"

Summary Background Many patients experience long-lasting health problems after COVID-19. The study aimed to assess 3-year trajectories of a comprehensive set of patient-reported outcome measures (PROMs) in patients hospitalized for COVID-19, particularly focusing on the 2- to 3-year trajectory...

Antiviral Chewing Gum May Prevent Flu and Herpes Transmission "The gum is made from lablab beans (Lablab purpureus), which naturally contain a viral trap protein (FRIL) that binds to and neutralizes viral particles. The FRIL protein was released efficiently during chewing, with more than 50% of...

Dapagliflozin for Long Covid Syndrome (DALCO)

Coffee exhausts my energy both cognitive and physical. I didn't tolerate coffee before I got ME. I can only tolerate two cups a week and when I stop for 2-3 weeks I have more energy to go out for walks.

From the link above: From the archive: "Shingles vaccine & dementia prevention: too good to be true?

"Yesterday, the journal Nature published a study on the shingles vaccine and dementia. 2 years ago I wrote a review of the authors pre-print, and why I’m not convinced it’s true. Link in replies. Stay tuned for an updated review of the Nature publication."

From one of the authors: "What’s next? We want to run a randomized clinical trial. This relies on philanthropy because we want to trial a version of the old shingles vaccine (that’s what we’ve all the evidence for!), which is no longer being manufactured. Reach out if you want to help fund!"

"Ded" is an internet slang term that originated from a misspelling of the word "dead." In online communities and social media, "ded" is often used humorously or informally to describe something as no longer functional, out of order, or extremely tired. Or Dry Eye Disease.

I suggested DEM and PEM. They might be different but we don't know that yet. I feel it has to include exertion.

I posted a study here in 2023