My sister who is six years younger than me developed Hashimoto. My sudden viral onset attacked my thyroid, I had 'extremely' elevated anti-thyroid antibodies and I got ME. Thyroid scan indicated my thyroid function was normal.
The site also says this:
Average duration in months
Research shows Long COVID dizziness persists an average of 43 weeks (approximately 10 months) after initial infection.
My dizziness/PVFS lasted 9 months after vertigo onset and thought I had recovered and returned to work, but I relapsed and...
January 29, 2026
Man suffering from 'profound loneliness' receives MAiD
"In another case of euthanasia via Canada's Medical Assistance in Dying (MAiD) program, a man in his 60s with a disability was euthanized despite his main source of suffering being loneliness.
Referred to as Mr. B in a...
This is how ME/CFS started for me. Woke up one morning completely fine until I stood up and was never the same again. It will be 35 years ago next week and I still have Benign Paroxysmal Positional Vertigo (BPPV) and recurrent inner ear viral infections.
Long Covid Dizziness: Causes, Treatment & Recovery
January 29, 2026
"The room spins when you stand up. A foggy, disconnected sensation follows you through the day. Months after recovering from COVID-19, you still cannot trust your own balance.
You are not imagining this.
Research published...
Note that we have the thread ADHD and ME/CFS for news and discussion relevant to both conditions
Nature: Why do women like me get diagnosed with ADHD late?
Emily Bates was diagnosed with ADHD at the age of 34. She explores how the condition presents in women and why so many are diagnosed...
Abstract
The Persistence of SARS-CoV-2 in tissues has been proposed as a driver of prolonged symptoms in long COVID. Pulmonary rehabilitation with exercise training is a well-established intervention for improving symptoms, functional capacity, and inflammation in chronic cardiorespiratory...
This was my case. One of the authors (my ME doctor) gave me a dx of 'atypical ME' aka CFS/PVFS. He told me that he typically diagnosed patient with viral onset, but there were some 'exceptions'.
It never ends.
Posted by one of the authors on X:
"NEW CASE REPORT:A woman diagnosed with Chronic Fatigue Syndrome (CFS) for 40 years!A blood smear identified Bartonella grade 4, the highest grade. She also had a diagnosis of celiac disease. When patients have such a severe infection, they...
January, 2026
Zoonoses are the leading cause of ME/CFS. Based on the results of 322 blood smears microscopies and the therapeutic response to antimicrobials against the identified pathogens
Conditions have phenotypes so we can't draw conclusions based on a selective group of patients.
I didn't have dysautonomia symptoms until a decade post ME viral onset. The orthostatic stress symptoms developed after reactivation of EBV and HHV6.
I've changed the language I use with my new...
I just saw these on the home shopping channel here in Canada. Available on Amazon but I'm not sure they are available in the UK.
Scubzz Bath Alternatives they are bath sponges and rinse free. They also offer sensitive skin sponges. I might order some for myself.
Abstract
Long COVID is a condition that arose during the COVID-19 pandemic in individuals who developed the multi-system chronic condition after a COVID-19 infection. During the pandemic in the United States (U.S.), these “COVID long-haulers” navigated a complex and overburdened health care...
It's one year ago in a few days that I got Shingles. I still get occasional neuropathic pain. My prescription is at the pharmacy and I'm getting my first Shingrix jab soon.
A gas-lighting dismissive medical professional who has no understanding creates a negative impact on a person who feels isolated and doesn't have family support. It shuts the patient down. I can understand how AI mental health support for people with chronic illnesses could provide non...
"PEM focus:
We’re planning a before-and-after exertion study (pre vs post exercise sampling) and we’re analysing long-form PEM descriptions from many patients to look for recurring patterns and rarer “5%” cases".
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.