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  1. Mij

    Was our ME/CFS inevitable?

    My sister who is six years younger than me developed Hashimoto. My sudden viral onset attacked my thyroid, I had 'extremely' elevated anti-thyroid antibodies and I got ME. Thyroid scan indicated my thyroid function was normal.
  2. Mij

    Self-reported Tinnitus and Vertigo or Dizziness in a Cohort of Adult Long COVID Patients, 2022, Degen et al

    The site also says this: Average duration in months Research shows Long COVID dizziness persists an average of 43 weeks (approximately 10 months) after initial infection. My dizziness/PVFS lasted 9 months after vertigo onset and thought I had recovered and returned to work, but I relapsed and...
  3. Mij

    Do Patients Without a Terminal Illness Have the Right to Die? Canada—mentions CFS

    January 29, 2026 Man suffering from 'profound loneliness' receives MAiD "In another case of euthanasia via Canada's Medical Assistance in Dying (MAiD) program, a man in his 60s with a disability was euthanized despite his main source of suffering being loneliness. Referred to as Mr. B in a...
  4. Mij

    Self-reported Tinnitus and Vertigo or Dizziness in a Cohort of Adult Long COVID Patients, 2022, Degen et al

    This is how ME/CFS started for me. Woke up one morning completely fine until I stood up and was never the same again. It will be 35 years ago next week and I still have Benign Paroxysmal Positional Vertigo (BPPV) and recurrent inner ear viral infections.
  5. Mij

    Self-reported Tinnitus and Vertigo or Dizziness in a Cohort of Adult Long COVID Patients, 2022, Degen et al

    Long Covid Dizziness: Causes, Treatment & Recovery January 29, 2026 "The room spins when you stand up. A foggy, disconnected sensation follows you through the day. Months after recovering from COVID-19, you still cannot trust your own balance. You are not imagining this. Research published...
  6. Mij

    ADHD - general news and discussion

    Note that we have the thread ADHD and ME/CFS for news and discussion relevant to both conditions Nature: Why do women like me get diagnosed with ADHD late? Emily Bates was diagnosed with ADHD at the age of 34. She explores how the condition presents in women and why so many are diagnosed...
  7. Mij

    Serum extracellular vesicle RNA profiles in long COVID: insights from exercise-induced gene modulation, 2026, Asghar Abbasi et al

    Abstract The Persistence of SARS-CoV-2 in tissues has been proposed as a driver of prolonged symptoms in long COVID. Pulmonary rehabilitation with exercise training is a well-established intervention for improving symptoms, functional capacity, and inflammation in chronic cardiorespiratory...
  8. Mij

    One-Year Follow-up of Young People with ME/CFS Following Infectious Mononucleosis by Epstein-Barr Virus, 2023 Scheibenbogen et al

    This was my case. One of the authors (my ME doctor) gave me a dx of 'atypical ME' aka CFS/PVFS. He told me that he typically diagnosed patient with viral onset, but there were some 'exceptions'.
  9. Mij

    Chronic Fatigue: The forgotten epidemic revived by Long Covid. Gatekeeper Press. 2024 Sep 5. [Book]. Walter Tarello

    It never ends. Posted by one of the authors on X: "NEW CASE REPORT:A woman diagnosed with Chronic Fatigue Syndrome (CFS) for 40 years!A blood smear identified Bartonella grade 4, the highest grade. She also had a diagnosis of celiac disease. When patients have such a severe infection, they...
  10. Mij

    Chronic Fatigue: The forgotten epidemic revived by Long Covid. Gatekeeper Press. 2024 Sep 5. [Book]. Walter Tarello

    January, 2026 Zoonoses are the leading cause of ME/CFS. Based on the results of 322 blood smears microscopies and the therapeutic response to antimicrobials against the identified pathogens
  11. Mij

    Why are children and young people more likely to recover from ME/CFS than adults?

    List of studies posted here includes not just women, but childhood as well.
  12. Mij

    Shared autonomic phenotype of long COVID and myalgic encephalomyelitis/chronic fatigue syndrome, 2026, Novak, Systrom+

    Conditions have phenotypes so we can't draw conclusions based on a selective group of patients. I didn't have dysautonomia symptoms until a decade post ME viral onset. The orthostatic stress symptoms developed after reactivation of EBV and HHV6. I've changed the language I use with my new...
  13. Mij

    Keeping clean when severe - a thread for tips

    I just saw these on the home shopping channel here in Canada. Available on Amazon but I'm not sure they are available in the UK. Scubzz Bath Alternatives they are bath sponges and rinse free. They also offer sensitive skin sponges. I might order some for myself.
  14. Mij

    Shingles vaccines, chickenpox, Shingrix

    Thanks @Sean I'm waiting until after my dental appt first week in February.
  15. Mij

    Barriers to Long COVID Care in the U.S.: An Application of Levesque et al.’s Access Framework, 2026, Katherine F. Raymond et al

    Abstract Long COVID is a condition that arose during the COVID-19 pandemic in individuals who developed the multi-system chronic condition after a COVID-19 infection. During the pandemic in the United States (U.S.), these “COVID long-haulers” navigated a complex and overburdened health care...
  16. Mij

    Shingles vaccines, chickenpox, Shingrix

    It's one year ago in a few days that I got Shingles. I still get occasional neuropathic pain. My prescription is at the pharmacy and I'm getting my first Shingrix jab soon.
  17. Mij

    Shingles vaccines, chickenpox, Shingrix

    January 21, 2026 Spotlight on the Shingles Vaccine- Again! Two new studies add to a remarkable body of evidence for benefit
  18. Mij

    Shingles vaccines, chickenpox, Shingrix

    Herpes zoster vaccination and incident dementia in Canada: an analysis of natural experiments
  19. Mij

    Why Chronic Illness Patients Feel Safer Talking to AI Than to Doctors

    A gas-lighting dismissive medical professional who has no understanding creates a negative impact on a person who feels isolated and doesn't have family support. It shuts the patient down. I can understand how AI mental health support for people with chronic illnesses could provide non...
  20. Mij

    Amatica Patient-centred chronic disease research

    "PEM focus: We’re planning a before-and-after exertion study (pre vs post exercise sampling) and we’re analysing long-form PEM descriptions from many patients to look for recurring patterns and rarer “5%” cases".
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