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  1. bicentennial

    Living With: UK digital platform for NHS services including ME/CFS

    Maybe the NHS wants to employ the people who play mummies and daddies, teachers and school, in role-play play-grounds Or maybe it doesn't. Commissioners would have to be bent. The admin and clinical tools in queston are the tools designed to be machine-read. These tools are not designed for...
  2. bicentennial

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Ah so, as I thought, some NHS e-module is being mistaken for an advisory on the Guideline; in which case NICE ordained that it must be provided by secondary (hospital) level doctors. Was it? I also bolded the impact on research because its hard to get my head around that observation and retain...
  3. bicentennial

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    In this forum we have the makings of consensus on the pre-requisite specification for provisions required, to be inclusive for a seamless "experience", as one may get a bit better or a lot worse. So I think each patient needs one clinic to monitor their case throughout. If necessary then til...
  4. bicentennial

    Let's talk wheelchairs and mobility scooters

    Wheelchair Services in the UK is not hospital based (p.5) now. I think it was originally, but its long been outsourced to an assortment of sub-sub-sub-contractors, monetised commercial cheap-skate shops, maximising profit by cutting big corners, to minimise NHS budgets. For which the NHS turns...
  5. bicentennial

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I gather that he did not have the time to spare, which Action for ME could do with more of, from their ?Medical Advisor. At that time he seemed to be spread thin, like many dedicated people working, befriending, caring and loving in gaps designed, yes designed, into all systems - something being...
  6. bicentennial

    Using PCs versus laptops when you're mostly in or on your bed

    @TiredSam, thankyou, do you think it would clamp to the rail of a hospital-type bed as well? Or: - is it only for clamping to a head-board, shelf or table Asking for a friend who is very limited for internet sourcing, as it is still available here at https://www.amazon.co.uk/dp/B09J8PX9NQ...
  7. bicentennial

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Thankyou @Chandelier. I didn't know. Was her Coroner told all this? I agree @Sean. The protection is unaccountable, except its all been minuted so its a matter of record. In a Safeguarding procedure, legislated to hold the police, SS and NHS jointly accountable. With equal accountability...
  8. bicentennial

    UK: All Party Parliamentary Group on Coronavirus, March 2022 onwards

    This notion as reported, that no British child has Long Covid, so we don't want differential diagnosis of childhood school absence, researched, do we? This notion is reported in recent news from the International Symposium. I am not sure which bit in the thread it connects to. Does this...
  9. bicentennial

    Abbreviated Practice Guide for Social Work Practitioners: Fabricated or Induced Illness and Perplexing Presentations, May 2022, Dr. Gullon Scott et al

    Paediatricans, across the world, are also treated to a paediatric citation of NG < 206 < 1.7 Different emphasis. Thats a knack. I am sorry to say that our paediatricans, collectively, remain unable to define a differentiating diagnostic procedure, in case of suspected or confirmed M.E /...
  10. bicentennial

    Abbreviated Practice Guide for Social Work Practitioners: Fabricated or Induced Illness and Perplexing Presentations, May 2022, Dr. Gullon Scott et al

    My take (any mistake is mine - all corrections needed and welcome): This current FII Guideline (for social work) was produced on principle, in the wake of obsolete safeguarding guidelines, all radically revised by the current M.E Guideline NG206 1.7 (for clinics): - in case of THE most...
  11. bicentennial

    Abbreviated Practice Guide for Social Work Practitioners: Fabricated or Induced Illness and Perplexing Presentations, May 2022, Dr. Gullon Scott et al

    Abbreviated Practice Guide for Social Work Practitioners: Fabricated or Induced Illness and Perplexing Presentations (May 2022). Published by BASW the British Association of Social Workers. Authored by: Cathleen Long (Independent Social Worker) Dr Judy Eaton (....) Sally Russell OBE...
  12. bicentennial

    Keystone symposium Long COVID and Other Post-Acute Infection Syndromes August 10-13 2025

    That is the the student discount. Maybe I am not that kind of student. My browser won't load the page for registration so I can't find out. Maybe a whiparound
  13. bicentennial

    Clare Norton article about how doctors dismissed her as neurotic

    updated link to Clare Norton's 2019 article, with thanks
  14. bicentennial

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Transcript of the Interview between David Tuller and Oonagh Cousins Transcript taken from You Tube But that's just not going to be enough. It's not going to address the issue. We need national oversight and we need transparency around - are the M.E clinics being improved? Do …. we...
  15. bicentennial

    UK House of Lords/ House of Commons - relevant people and questions

    . Another, coincidental Question & Answer on Jan 7th Vikki Slade Liberal Democrat Spokeswoman (Housing, Communities and Local Government) Will the Secretary of State confirm what is being done - to ensure that patients with rare and complex conditions - such as functional neurologic...
  16. bicentennial

    UK House of Lords/ House of Commons - relevant people and questions

    . January 7th post #696 Memo Today is Monday January 27th. This Friday is January 31st The end of the month When our MP questions get answers This week we will be told how Mr Streeting will ensure that NHS reforms deliver: * timely diagnosis * effective treatment and * long-term...
  17. bicentennial

    Bird flu

    . Public Health In short: Americans want their brekky Curated federal disclosure must return cheap eggs America is horrified Bottom fell out of egg markets Vaccinate 20 million Birds Playing chicken Human vaccines: - protection market monopoly Hygiene: - beware sick and dead birds...
  18. bicentennial

    Review The Experience of Stigma in People Affected by Fibromyalgia: A Metasynthesis, 2025, Colombo et al

    Being paid to operate stigmatising systems in service to me I am not at all sure that rude professionals are more sympathetic if given a biomarker. They may have to acknowledge the core condition. But I heard so many stories of people with validated diseases (and other disabilities) being...
  19. bicentennial

    Robert Naviaux' Lab - News - from 2019 onwards

    . File attached gives the 9 minute intro In the file attached is a tidied-up version, from YouTube's transcript, of the introduction to this Robert Naviaux talk. Eventually I cut out some ums and ahs This intro-file is just the 1st 9 minutes of the video, as introduced by the Renegade...
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