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The finding is when alarmed ... not ... why alarmed I agree with people who say the immune system is both under-active and over-active. This was indicated in Dr Komaroff's study, detailing the immune findings in ME and CFS, and Long Covid Dr Komaroff also indicated, supposed or surmised...

Would not the charity be embarrassed if it emerges that their data collection tool is being uncharitably misused to coerce people, remove their disability income supports, force-march them, make the donkeys move with a carrot and a stick, flog the dead horse. Who can now ask the charity to...

I observe a critical state in many systems needing radical reform yesterday. Some breakthroughs broke through ugh trugh some programmed rearguard actions, so maybe your new GP is conducive, but: Is it necessary to have a walking assessment? If not, then is there any problem if one says: no...

This survey has nothing to do with implementing the guideline for provision of nutrition and dietetics to help minimise those problems in case of M.E with complications - some people can't obtain meals, and / or suffer partial intestinal failures, which become total intestinal failures if not...

I am upset and disgusted to see BACME diving in at the deep end to fasten only on people whose extreme plight was specifically excluded by the ME clinic networks which employ BACME Members These Members did not protest this, nor campaign for the most vulnerable. They knew which side their...

How do BACME dare aspire to produce a clinical guideline for the highly complex art of tubefeeding, as if the Nutrition and Dietetics experts cannot produce their own guideline If BACME could have enlisted with the experts they would have offered to assist them, not offered to write their...

Also, I agree with The ME Inquiry Report article on the National Board of Health and Welfare's expert group I say: this obsolete theory is not a new brainwave to rehash differently, still ignoring biomedical research, in a waffling juvenile struggle, all dumbed down into whatever it can pass...

I gather Sweden is NOT objective, factual and impartial - rather hire some expert(s), with obvious vested interests, allowed to impress lies upon the panel - just to get onto the panel to impress it some more. On Australia's watch too. For example: - a lobby network aims to pursue deforming...

Sounds like ideology from the top down, assigned by a government, allowed to publicly misquote a higher medical authority, the WHO, such that the WMA World Medical Association may intervene. Maybe Medical authority needs to intervene, maybe on the Helsinki principle v.60. Since higher medical...

It is so crucial - across the world and for the duration - to top up all persistently insufficient incomes for eg the workers, the unemployed, the elders, the children and their parents, the sick or injured. Or amputated, chronically ill, mutated, deformed permanently disabled people. So we...

@jnmaciuch if I understood right, its not sacrosanct magic surety, its a statistical restructuring device to perfect draft questionnaires by Rasch analysis, flag up dual interpretation, prune query lists, grade severity of phases: but guarantees nothing. I guess it can be used in algorithms...

I guess assessment, monitoring and audit are integral. The systematically monitored clinical assessment I appreciate a lot, is whatever it was which uncovered the excess deaths eg in mother and baby units, likewise unnecessary removal of organs by some "surgeon". I now gather this is routine...

Well, the stroke-rehab specialist (Sarah Tyson) - who designed this profile for the treatment - is also rehabilitating the rehab treatment (under its new "humane" label). So yes it may well lead to treatment by humanity majors, dodgy statisticians, mathematically challenged algorithms and AI...

Some clunky software devices get sold for £ millions as if purpose-built. Sold to non-profits, the NHS and other government (for bulk people-processing, bulk itineraries, and bilk accounting). Actually converted from existing software, cobbled together and patched in as on the cheap, hence...

But the AI lined up has the time (already planned). Its widespread what we epitomise (in my opinion) There are several clunky, competing digital platforms, advertised and sold to all hospitals and GP clinics, to: - carry the patient interface with admin, clinical, and medical records These...

How transparent is all this traded secrecy, when disclosure is required? Our MHRA model is highly critical. As is any nation's regulator model, once set out to govern this trade. Our Medicines and Healthcare products Regulatory Agency (MHRA) did catch up with all such Medical Device...

* MHRA Guidance: Medical Devices - Software Applications (5 files): Medicines & Healthcare products Regulatory Agency (for real); maybe the 2023 upgrade, of MHRA's Software Regulation, upset some minority, so a big fuss began in 2023, maybe? - "Information on when software applications (apps)...

I don't believe it was researched to develop a gold-standard profiling tool-kit. I think thats a slick but false impression, habitual windowdressing. I believe it was researched to provide evidence for registration under the Medical Devices Regulation - Software Apps, with evidence & warrant of...

It sounds like applied behavioural science doing a behavioural analysis with a view to behavioural modification. But they are in the wrong clinic. However the Myalgic Encephalopathy Association is now renowned for insisting that even us animals must move. Definitely a Board decision. Its a...

Thankyou. To respect the unpublished data of the respected authors - how do we properly quote, and discuss, this Open Access Content? These scientists were required to approve this release of their conference input. So IF quoting the actual presentations, how do we protect their data, with all...