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  1. bicentennial

    UK BACME ME/CFS Guide to Therapy 2025

    There is so much misrepresentation. I want to tell the local commissioners (clinical, municipal and police) it is mis-selling (so they need to tell their respective Safeguarding Leads). Pacing does NOT "improve functional capacity", it preserves my capability and precludes unnecessary exertion...
  2. bicentennial

    UK BACME ME/CFS Guide to Therapy 2025

    What is the laboratory proof of a theoretically devastating dysregulation? My clinical tests are normal are they not? I have quite enough on my plate with grievous bodily harm done by disease interfering with biochemistry and signal transmission. My homeostasis is so strong it holds to a...
  3. bicentennial

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    Maybe lets start with precise language on the closest approach that seems to be a neurological and immune systems approach, - as this forum found some sounder research indicating both of these 2 systems got involved - but this forum did not on the whole go so far as to fall in with an...
  4. bicentennial

    Physical capacity modulates intestinal barrier dysfunction in functional disorders: phenotype-specific patterns in [FM] and [IBS] 2025 Russo et al

    Zonulin is worth exploring, so let us get back to it, but this paper also reveals something else. This is the 2nd paper I came across saying a dose of exercise can be prescribed like a drug, if adhered to. How many more? This paper shows a perseverant determination, to append exercise programs...
  5. bicentennial

    UK BACME ME/CFS Guide to Therapy 2025

    3. No thankyou 4. In my view BACME just talked themselves out of a job. This is my observation. Its not a theory, its not an opinon. It does remain to be seen. I have good reason, sound mind, and I am not a lobster.
  6. bicentennial

    Germany's "National Decade Against Post-Infectious Diseases"

    Independent ethical industry can research the biological target for corrective medicines which won't burden the organs of elimination, and the state expenditure. That burden of umpteen otherwise unaffordable, intolerable or barely tolerable life-long prescriptions. Handed out like candy by a...
  7. bicentennial

    COFFI - The international collaborative on fatigue following infection

    One of these days they won't know where to put themselves these highly organised collaborators, I doubt they are capable of entry-level sports medicine, but they surely have insurance cover for the dreaded event, the regime change they accelerated, i doubt anyone can be bothered with tar and...
  8. bicentennial

    RETRACTED: Post–COVID-19 Condition in Children, 2023, Hahn et al

    No. As you may know but to remind you, it came out later in the Covid Inquiry that some bigwigs were very keen to evidence that children were avoiding school due to some lockdown syndome and some decompensated neuro-divergence and some covid aftermath but being expert they just can't tell...
  9. bicentennial

    Bird flu

    I gather the HPAI avian flu is currently virulent and in circulation so one turkey gets it then the whole flock had to be culled fast, in Norfolk (towards the south east of England).
  10. bicentennial

    Apps used by NHS clinics for ME/CFS and Long Covid

    So that is 2 apps paid for by the local NHS commissioners, to replace a service with an expanding clientele It is amazing - despite wide-spread rejection of "useless" service it persists by convincing the local NHS sub-contractor that it is popular and effective and valuable. This Merseyside...
  11. bicentennial

    Apps used by NHS clinics for ME/CFS and Long Covid

    Please see information below about the FREE symptom monitoring app and other resources that may be of assistance. C19-YRS symptom monitoring app The C19-YRS app is recommended by NHS England, and Mersey Care has funded it for 12 months so that you can access it free of charge until July 2026...
  12. bicentennial

    Apps used by NHS clinics for ME/CFS and Long Covid

    8 July 2024, Merseyside Care Launch an Elaros Alternative and announce closure If you think you’re suffering from any of these symptoms, please go and see your GP for a referral. The app with all the exercises, breathing techniques and mindfulness is available to patients of Mersey Care’s Long...
  13. bicentennial

    United Kingdom: Neighbourhood Health Centres

    Then came Covid-19. So now we all know Covid is swamping services with an aftermath of multiple chronic illnesses. And frailty. At younger ages. Frailty is what warrants Medicaid after the USA cutbacks. The reports from the 2024 MEA AGM relayed that Dr. Charles Shepherd had by then discovered...
  14. bicentennial

    United Kingdom: Neighbourhood Health Centres

    Multiple chronic illnesses on the whole set in around the age of 65. This statistic determined that 65 was the relevant marker. There were so few people under 65 with multiple chronic illnesses, it was a geriatric cohort. Although the number of middle-age illnesses in the younger adults was...
  15. bicentennial

    United Kingdom: Neighbourhood Health Centres

    It won't wash. The ME Delivery Plan is distinctly separate and was derived in a distinctly separate Consultation, albeit concurrently. If - as suspected - the NHS wants its newly upgraded, local Community Health Centres to be the judicial legitimate implement for delivering the ME/CFS...
  16. bicentennial

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    How about the fringe service - optional, no longer a core service, all forms of CBT - how about it gives way to the core service in need of the subsidy. Soon, all the clinical psychologists will have their own M.E / CFS Guideline, so anyone with M.E who wants CBT can ask their GP for referral to...
  17. bicentennial

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    I want to know what each of the existing (sub-contracted and funded) ME / CFS clinics proposed to Government, at the audit stage ("stocktake"), on which audit this radical new delivery depended (hence we were told the delay). But it found the gaps I want to know what each and every existing...
  18. bicentennial

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    With good reason, I say seamless must mean one specialising clinic for all stages (not referrals back and forth between staged clinics). The actual format is not being specified, and specialist might not mean its only for more severe cases. I think any ME / CFS clinic is supposed to be...
  19. bicentennial

    MRC/NIHR DecodeME Showcase meeting online and in person Nov 6th

    It all suggests this is all too obviously a high priority still being inexplicably and mysteriously avoided - failing which - minimised Harking back to 2015, is Professor Hugh Perry still here? He was at the MRC in 2015 as: * a Member of the Research Collaborative Board * the Chair of the...
  20. bicentennial

    MRC/NIHR DecodeME Showcase meeting online and in person Nov 6th

    Maybe the organisers can provide a bulletin and follow-up afterwards, to meet the unplanned, unmet demand - once enlightened by such unexpected, underestimated interest. AI has been used in online meetings to record and transcribe for internal use. That might allow wider provision of an...
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