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  1. bicentennial

    United Kingdom: News from #There for ME

    https://www.thereforme.uk/p/christmas-campaign-week-1 https://www.thereforme.uk/p/christmas-campaign-week-2 https://www.thereforme.uk/p/christmas-campaign-week-3 https://www.thereforme.uk/p/christmas-campaign-week-4 Maybe "able ... to feel" meant "enabled to feel" but even so the choice...
  2. bicentennial

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    All of that still being salvageable, while yet another "scrap-it and upgrade" became ruinous and also pandemically unaffordable, plus all those model examples (of how not to) admittedly withdrawn 5 years later: - Cochrane can finally join N.I.C.E and the W.H.O, get called a bullied bully...
  3. bicentennial

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    very key point indeed, and by Cochrane's own admission So the 2019 review was out of date thereby providing misleading information to decision makers being asked by this deception to obtain money by deception (unless and until withdrawn) This was not my opinion it was Cochrane's opinon so...
  4. bicentennial

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    A Contract Award Notice by NHS FRIMLEY ICB explains the dire straits being serviced by a (not-for-profit) £4m TalkPlus contract (if effective) TalkPlus What We Do - stress, anxiety, low mood and worry, as well as - support for managing a long-term health condition For Anxiety and Depression...
  5. bicentennial

    JK Rowling new book — chronic illness references

    She certainly did @Lou B Lou no doubt about it, and its this thread made it so clear Character assassination is seriously dangerous ... and in a hundred ways so 100x over You are not the one going for the cheap shots. It is our sort of women and kids in the line of fire. Just can't monsterise...
  6. bicentennial

    JK Rowling new book — chronic illness references

    Yes @Theresa maybe not so random - that was done in Grange Hill too (the school-age TV soap) but maybe it got more balance there. I think there was one schoolboy off school in a wheelchair being told by the hospital and so then told by his friend - who he needed to push his chair - that its a...
  7. bicentennial

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Can the DWP balance books by requiring the Return to Health and Work budget to return Remploy in-house, why profit Maximus instead when its not sustainable, why not show a reduction in the income supports that won't be reduced by Covid, get it done? https://en.wikipedia.org/wiki/Remploy...
  8. bicentennial

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    QUALITY CONTROL > DON'T BE A TOSSER > LITTER BUG tornandfrayed cited UK White Paper UK White Papers NHS & Cochrane to defy DWP Since the DWP got quality control on its outsourced tenders ? UK White Paper is convinced by extensive studies (see a Cochrane literary review maybe)...
  9. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    could that include a Denver Principle: In the vetting fields of clinic, research and ethic, a most pertinent principle may be adapted by an advisory committee of people with M.E / CFS, when invited, as stated in 1983 by the Advisory Committee of People with AIDS in Recommendations for...
  10. bicentennial

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I can't keep up with the changes @JellyBabyKid so all i know is out of date but I think once upon a time one could simply black out the itemised rows of expenditure, being private, and just show all the income and balance with name and address and account numbers, these being the only proof...
  11. bicentennial

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    yes but he can't keep the gangs in line let alone Congress
  12. bicentennial

    USA: Mount Sinai PACS clinic and Dr David Putrino

    - Transcriber: Matheus Miranda so is it not always automated then? - Reviewer: Massa Krayem even better ... must be a professional outfit My study notes - if reading their You-Tube Transcript correctly - padded out with study obs: Seems the neural stupefaction could be excluded...
  13. bicentennial

    USA: Mount Sinai PACS clinic and Dr David Putrino

    STUDY NOTES 101: Eligibility - if reading the You-Tube transcript correctly - padded out with study obs: The eligible definition of Long Covid was updated by some or all stakeholders. This new, breathtaking, “broad” cohort-delineation may be problematical and it may prevail. It was staked...
  14. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    As much as any notorious walking disaster still had the infamy and gall to misinform and disinform a global evolution of ethics being otherwise informed by abject subjects galore and then by N.I.C.E, WMA and WHO and other assorted "bullies" Here is my reading of the Nature Medicine Editorial...
  15. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    THE INDUSTRY-STANDARD OR THE BOG-STANDARD OF MEDICO-LEGAL CONSENSUS In retrospect there is an avalanche of unscreened, substandard elitist research to be notified as no longer ethical, so maybe a short list will do, in brief marking each paper that notably overlooked its subjects and how...
  16. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    RESEARCH ETHIC > COCHRANE .. COFFI .. OSLO > REHAB PUBLICITY It is no longer ethical to launch a costly research project without recruiting an advisory board Can we form a streamlined easygoing advisory board? i suppose an ethics commitee does enforcement by preclusion, but where are...
  17. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    Nature Medicine Volume 30 | December 2024 | 3383 Editorial Published: 02 December 2024 pdf version Declaration of Helsinki Embraces Health Equity https://www.nature.com/articles/s41591-024-03433-5.pdf html? version Declaration of Helsinki Embraces Health Equity...
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