Search results

  1. bicentennial

    Should we change our name: 'ME/CFS Skeptic'?

    If you have time best give yourselves plenty of time to percolate the right name ME/CFS Brigadier ME / CFS Vigil ME/CFS CrunchyMunchy Antiseptic Skeptic ME / CFS Atomiser ME/CFS Research Scope Scoping ME / CFS (Research) ME/CFS Scope ME/CFS BenchMark ME/CFS Evaluation ME/CFS Gold ME?CFS Meticule...
  2. bicentennial

    Internal tremors and vibrations in long COVID: a cross-sectional study, 2023, Zhou, Iwasaki et al.

    Ok, phew, gobbledy-gook mangles the brain By some cross-sectional comparison the previous paper had noted that these inner shakes tend to mark the iller cases (which also have a different presentation), so this consequent? paper is targeting those most in need of clinical care "Among people...
  3. bicentennial

    UK: Long COVID SOS News

    The charity is made up now as the chosen, funded, patient participation group under the Helsinki guidance on PPE ( Patient Participant Engagement ). Done The Clinical Post-Covid Society sounds like its modelled on or by BACme It sounds like a monopoly unless the clinicans put out open invites...
  4. bicentennial

    Internal tremors and vibrations in long COVID: a cross-sectional study, 2023, Zhou, Iwasaki et al.

    I am sorry I thought I could keep this one short, but it doesn't work like that, so I added spoilers again to keep the scrolling short - um - shorter instead and - memo to myself - I must remember to take these CNS obs over to the thread started by @Creekside who was wondering in forum: General...
  5. bicentennial

    JK Rowling new book — chronic illness references

    So can Strike sell safe vapes to a stoic audience, along with a Comparative Disadvantage 101 class in ? But rumour has it a vape is safer than tobacco. Can't ban smoking from drama too. So this is just promoting a safe smoke according to BBC belief - and according to JKR's belief (or known...
  6. bicentennial

    The Concept of ME/CFS, 2024, Edwards

    I forgot to ask can anyone publish a paper on Qeios, not that I could but others might and not only those several others with more to add on on this matter of urgent provision I think maybe this needs a correction as i saw in this paper an eminently practical approach, not a theoretical...
  7. bicentennial

    UK: Long COVID SOS News

    Then there are various lines of propaganda constructing emergent aversion to ME / CFS communications and alienating the SOS Covid band too It sounds to me like this band was intentionally misled to provoke disruption or else it just urgently needs a leadership-rethink based on the primary care...
  8. bicentennial

    The Concept of ME/CFS, 2024, Edwards

    Upon that pointer I venture to say: also the intense demand to acknowledge possible causes is like a river fed by several streams. There is urgent despair, clinical frustration, bereavement, exploration and business interest, all maybe cutting corners, maybe Maybe skipping the next step which...
  9. bicentennial

    Should we change our name: 'ME/CFS Skeptic'?

    would it suit all purposes to keep the name as is but add a question mark or two at the end would a question mark reassure someone enough when avoiding the trash-talk altogether ? maybe leaving one space between the last word and the mark, if easier to unscramble and separate each out if two...
  10. bicentennial

    JK Rowling new book — chronic illness references

    @forestglip I don't know how the plot pans out but if we exchanged fone numbers and got talking and then a detective asked me why on earth we had made contact i'd say whyever not, or try to give the thesis about coming in from the cold, or I'd ask if he was told it is still a pathological...
  11. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    San Code of Research Ethics - !Khwa ttu Respect We require respect, not only for individuals but also for the community. We require respect for our culture, which also includes our history. We have certain sensitivities that are not known by others. Respect is shown when we can input into...
  12. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    But on the streets we all confuse our mass deceit with accurate news Aha, the broken record technique, I was told it always works, told by someone who always applies it, tiresome I suppose, but such is the persistent sympobotttom of their perseverant delusion, shooting a gift horse in the...
  13. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    QUALITY CONTROL OF MEDICAL RESEARCH Best practice and existing frameworks specify: - prior recruitment of a patient, public or community advisory board - commitment to co-design - willingness to change tack based on community feedback - productive rigorous scientific discovery @Suffolkres...
  14. bicentennial

    JK Rowling new book — chronic illness references

    what did jar was the questioning by the detective as if it was obviously questionable that one ill person would want to communicate with another despite having a doctor to communicate with instead
  15. bicentennial

    JK Rowling new book — chronic illness references

    Hence my ambiguity in the context of other scenes reported and in the nuances I was looking for by then, so I could see what I would love to see - the illness portrayed, but also I could see other impressions as if looking through the eyes of someone with the opposite confirmation bias. As one...
  16. bicentennial

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    So far I could not proceed with the document but happily i can rely on the pertinent extract provided - here is my working theory so far: at last some more of the profligate waste, rough and tumble was noted and can be stopped because it must be stopped, although best it stops of its own accord...
  17. bicentennial

    JK Rowling new book — chronic illness references

    I only saw one clip with no other plotline to distract me @Kitty, or maybe you went for the kettle and missed this bit I got so hung up on for lack of balance, or being wondrously blithe maybe you are just not bothered by grownups being particularly silly, i can't guess: Below is the clip that...
  18. bicentennial

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I thought so, that is the distinct impression I got from the wealth of info given me here, so it looks like its just about "assessing" the alleged or indicated or suspected or proven risk of a rehab model, as applied to legwork, in such cases, and with a sneaky label conflating the pacing with...
  19. bicentennial

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Did Cochrane specifically review nutrition and malnutrition treatments for M.E ? Is the conventional and unaccomodating rehab applied across the UK in such cases ( of malnutrition and nutrition ) is it just an extrapolation from the Larun review ? Does the Larun review, which I have nor...
  20. bicentennial

    United Kingdom: News from #There for ME

    Oh good I had hoped it was just his manner of speech, as he seemed to be an outlier with potential I can take your word for that @bobbler as your perception is evidentially spot on, so - it being a well-observed habit - then would the wordy verbiage indicate that maybe its a way around telling...
Back
Top Bottom