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@Trish, they should mourn your withdrawal since you gave them such good publicity in your widely-read review on Amazon of that popular Xmas book, signposting them to people needing accurate literature on M.E / CFS, back in the day when their literature was expurgated, but now it is ungoverned an...

who artfully pays for such artfully blinding and profiteering nonsense, and why, and are all these papers open access or making pocket money from downloads or am I the bitterly paranoid and hostile toerag who doesn't want people to benefit from scientific discovery - and did the writers all...

will MEA co-operate with S4ME on a definitive list of symptomatic sub-cohorts starting duly with their mildly affected or frail minorities and opening up their otherwise exclusive patient-participation-engagement (PPE) in their design of their (part-funded £1m) 2025 epidemiological research...

: It is "strictly" limited to end-of-life eligibility The UK is patient and has not passed the euthanasia law - it is still drafting it with patient participation at the euthanasia plan portal which was intentionally expanded to now include the M.E Delivery Plan Portal (Plan Portal as as...

THE SCIENTIFIC REMEDIES 1. INVESTIGATOR (see post above): -- Its edgy. -- Our AI measures pain. -- We got BIO-markers. -- Leave us alone -- Biden thinks big. Don't pick on Biden Seems like the wrong thing to say others hope that Trump’s vow to reduce wasteful federal spending through a...

on the other hand the question is can the MEA mark their own homework, do they want to try again and show they can or would they rather a new law mark it for them - regulate or dereg is the global viral question

and see here https://www.s4me.info/threads/impacts-of-the-2024-change-in-us-government-on-me-cfs-and-long-covid.41047/page-7#post-575914 and when the time is ripe at the wearable rollout Wes Streeting portal, maybe change the name of this poll thread to ? what do we know about the horizontal...

the wearables may follow becasue Mr Wes Streeting announced the pilots and provisions are proceeding apace on the NHS as fully pioneered already in Plymouth Hoe for the remote monitoring of i think Parkinsons and soon to be bespoke to other conditions and rolled out across the uk so he wants us...

maye afterwards the recliners can be polled separately for comparison my pattern is currently stable in thatIi must recline "by day" and go for flat out all "night"l(except by sleep cycle is rotating again), reason being that i cannot currently sustain the generation of energy to power...

The MEA has assumed another duty by representing the whole population of people with ME, purporting to be our MouthPiece in Parliament too, also speaking for the 25% Group etc This may not be specfied in their constitution but having assumed the functional role, its become a legal duty Thats...

I'd not thought of all that, it would be so hard to get perspective on all of that in the middle of all that, also in my case 6 interconnectied clusters gets all too complicated, scrambles the brain, no wonder i couldnt work in one or hardly engage one, and now the crazy spite wants unleashing...

soon to be overtaken by events

THE SCIENTIFIC REMEDIES 1. INVESTIGATOR: Its edgy. Our AI measures pain. We got BIO-markers. Leave us alone - Biden thinks big. Don't pick on Biden Seems like the wrong thing to say

Derived from the Boston Globe report linked above: Index THE SCIENTIFIC REMEDIES 1. INVESTIGATOR: -- Its edgy. Our AI measures pain. We got bio-markers. Leave us alone -- Biden thinks big. Don't pick on Biden. Seems like the wrong thing to say 2. POLICY...

This might have been the same under the previous regimes. I sometimes think all institutions tend to hold prejudice and blacklist dissent. This regime reinforces the fear with threats to decommision big chunks in line for ongoing commissions ..

For the time-chart, would there be an option to block in for reclining as well as for horizontal ? Also, when I get slightly lightheaded its constant until it wears off, whether in bed or sitting or upright, so its not particularly related to postural change. So would my entry mess up the...

Audit nice, can the blog do other audits or only research audits, it would be so good to have some thorough specific authoritative reviews of other things going on in the field, or maybe invite more articles and papers on field-matters then review them