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  1. Daisymay

    CDC Treatment Evidence Review - consultation period

    Thanks very much Mary for all your work on this x
  2. Daisymay

    Physios for ME

    Welcome and thank you Physios for ME. I've sent you private message.
  3. Daisymay

    New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies

    https://www.brighamandwomens.org/about-bwh/newsroom/press-releases-detail?id=3352 New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies Study finds altered gut microbiota in infants with food allergy; oral therapy to replenish bacteria prevented food allergy and suppressed...
  4. Daisymay

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    And if patients did report harm woud they be believed or would it be dismissed/downplayed as part of their wrong illness beliefs?
  5. Daisymay

    A general thread on the PACE trial!

    Thanks for posting and of course for giving the talk. Were the audience shocked at what they heard re the standard of the "science" ? And the links with the whole MUS issue?
  6. Daisymay

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    So their profession takes precedence over patient care and safety, and scientific accuracy, that says it all really and from what we know from all these years of ME, not surprising in the least, but what an ethically and scientifically bankrupt perspective. Shame on them.
  7. Daisymay

    Menopause and ME - what's your experience?

    Another question worth asking is did you feel better or worse once through the menopause. I felt better once through the menopause ie better than before the menopause. It was a relief to be free of the monthly added exhaustion of periods, not that I had bad periods, just it would take quite a...
  8. Daisymay

    KCL and the PACE data

    Well done JtJ, thanks so much for ALL your sterling work x
  9. Daisymay

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    https://www.meassociation.org.uk/2019/04/stanford-biomarker-for-chronic-fatigue-syndrome-identified-30-april-2019/ Ron Davis: “We will continue this work. What we were trying to do at the very beginning was distinguish ME/CFS patients from health controls. And the reason for that is to say, if...
  10. Daisymay

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    In the recent video, Ron Davis said they are going to do the nanoneedle test on MS and other diseases.
  11. Daisymay

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    http://www.sciencemediacentre.org/expert-reaction-to-study-investigating-a-potential-biomarker-for-chronic-fatigue-syndrome-me/ Prof John Martin, Professor of Cardiovascular Medicine, UCL, said: “If a test is to have meaning it has to be able to be applied to a population of patients who can...
  12. Daisymay

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Hooray! Hooray! Brilliant, another year, thanks to everyone who was able to contribute. And of course to Dave for sticking with us for another year!
  13. Daisymay

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Donated with pleasure and gratitude x
  14. Daisymay

    Private Eye - Paul Foot Awards: Nominations - want David Tuller?

    Excuse my addled brain, what is the KP development?
  15. Daisymay

    The Bigger Picture

    One Health contact, 100 Fetters Lane: https://companycheck.co.uk/company/04364122/ONE-HEALTH/contact Messr Beachcroft, 100 Fetters Lane: https://www.dacbeachcroft.com/en/gb/locations/london-fetter-lane/
  16. Daisymay

    The Bigger Picture

    Info and context on "One Health" can be found in this article, including The Discussions, p 11 - 16 http://www.margaretwilliams.me/2016/proof-positive-revisited.pdf The Discussions In the context of the PACE trial and the recently-released data, of particular importance and relevance is the...
  17. Daisymay

    Trial By Error: Kaiser Permanente Changes Course

    Thanks you so much @Webdog, a true "dog with a bone"!
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