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  1. Daisymay

    Clare Gerada: influence on UK medical practice and ME/CFS management

    https://timesofmalta.com/articles/view/maltese-doctor-made-a-dame-in-queens-honours-list.823675 Maltese doctor made a Dame in Queen's honours list Clare Gerada is the first Maltese woman to be awarded a damehood
  2. Daisymay

    Post Covid-19 Syndrome naming

    At least they're not yet calling it post covid wrong illness belief syndrome
  3. Daisymay

    A two part article from Goodelf on MUS

    More interesting stuff from Goodelf, a two part article on MUS https://opposingmega.wordpress.com/2020/08/19/so-what-if-23-get-worse-2/ Part 1: The PCPCS – a ‘One Door’ Approach to MUS By Goodelf https://opposingmega.wordpress.com/2020/08/19/so-what-if-23-get-worse/ Part 2: One Door, One...
  4. Daisymay

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thanks for posting it, may still have an impact even if not posted.
  5. Daisymay

    New Video: The PACE trial - Politics

    Another truly excellent video, thanks so much Adam pwme
  6. Daisymay

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Yes, and it's interesting that we've not had any mass hysteria among the worlds female nurses and doctors during the covid pandemic, on the contrary female nurses, doctors, cleaners and carers in care homes have been extremely selfless and brave.
  7. Daisymay

    e-coli infection and leaky gut

    Graham, I hope things improve for you now you've got your GP monitoring things x
  8. Daisymay

    Government and Insurance companies - establishing the BPS model

    "6. Treatment is difficult, extraordinary sensitivity is necessary." This from Wessely, you must be joking.........the way he and his colleagues have repeatedly, publicly vilified us over all these decades.......their treatment of us has been extraordinarily insensitive, unscientific, unethical...
  9. Daisymay

    The biology of coronavirus COVID-19 - including research and treatments

    Well I've had reduced sense of taste since I had both glandular fever and then coxsackie B3 in 1980. Though weirdly a times, or rather I think it's more with just some substances, my sense of smell is SO acute and I can react to small amounts of perfume, smoke, paint etc, so it's odd but...
  10. Daisymay

    UK: Physios for ME

    Wow! Thanks so very much for all you're doing and for being the roll model for these other groups.
  11. Daisymay

    NICE Statement about graded exercise therapy in the context of COVID-19

    I've just emailed Dr Weir and the Countess of Mar about this, with the video and transcript and suggested they inform NICE.
  12. Daisymay

    Call for doctors to clearly declare any funding from industry

    I'm sorry you had to go through that but what a good example, if you'd known the background you wouldn't have gone or at least you would have been forewarned.
  13. Daisymay

    Call for doctors to clearly declare any funding from industry

    In Baroness Julia Cumberlege report on the pelvic mesh etc scandal, calls for doctors to have to clearly declare any funding from industry. If the BPS doctors involvement with the insurance industry, for all these decades, had really been out there, clearly declared for all to see, with all...
  14. Daisymay

    Chronic Fatigue Syndrome - Summary of a Report of a Joint Committee of the Royal Colleges of Physicians, Psychiatrists and GP's, 1996, Simon Wessely

    In case of interest, these articles from the time: http://margaretwilliams.me/1996/observations-on-joint-royal-colleges-report-cr54.pdf OBSERVATIONS ON THE JOINT REPORT OF THE UK ROYAL COLLEGES OF PHYSICIANS, PSYCHIATRISTS AND GENERAL PRACTITIONERS ON CHRONIC FATIGUE SYNDROME, OCTOBER 1996...
  15. Daisymay

    Many Patients With Irritable Bowel Syndrome Have Atypical Food Allergies Not Associated With Immunoglobulin E (2019) Fritscher-Ravens

    Very interesting and important. Those with IBS and anyone with food allergies are so often treated as if it is a MUS. More evidence that MUS is a seriously flawed concept.
  16. Daisymay

    Fragrance sensitivity

    Yes, it makes shopping from charity shops nigh on impossible.
  17. Daisymay

    e-coli infection and leaky gut

    And belated very best wishes from me too, I do hope this latest treatment round does the business and leads you back to "normal".
  18. Daisymay

    New Video: The Lost Decades

    This is really excellent, thanks so much Adam, it's succinct, informative and really powerful. Thanks v much for all your work on all your videos x I've reached 40 years now of this disease and it is so depressing that such little progress has been made. It truly is a scandal that this has been...
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