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  1. Daisymay

    Who is Simon Wessely?

    And preferably to a desert island in a galaxy far far away!
  2. Daisymay

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Good grief.....is that what happens in journals too, that papers can only be retracted if the authors agree?
  3. Daisymay

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Can someone please explain, is this just going to be a progress report on where things are with the new review of GET? I had been thinking we were going to get the actual final review. Confused.....
  4. Daisymay

    Medical School Education on Myalgic Encephalomyelitis, 2021, Muirhead,Marsh et al

    Totally agree, this is an absolutely huge part of the problem. Their failure to give the info implies their syllabuses are controversial and they know it.
  5. Daisymay

    Medical School Education on Myalgic Encephalomyelitis, 2021, Muirhead,Marsh et al

    Well the fact none of them shared details of what they were teaching to me speaks volumes, why not if they have nothing to hide? Does this not strongly imply they are teaching BPS view and they won't share the content of their course because they know there is a major problem with it? No...
  6. Daisymay

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Mind you there are certain forms of finger lifting, involving two at a time.....which may be quite appropriate for patients to use!
  7. Daisymay

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Quite so, and imagine the comments from the medical profession if PWME had ever called a group "ME patients in Distress", the medics/media/benefit agencies would have had a field day, saying that it confirmed it is psychological, with indulgent, attention seeking patients focusing on being...
  8. Daisymay

    UK: Physios for ME

    Thanks, and if I may add, if you are in touch with Forward ME, any other ME charities and MPs could you please bring the issue of consent up as I think ensuring fully informed consent could be a really pivotal tool to enforcing the new guidelines and the re-education of medics happens as soon as...
  9. Daisymay

    UK: Physios for ME

    Thank you so very much for all your work! Will you be including information on consent, to ensure they are aware it is their legal obligation to ensure patients are fully informed of any material risks etc etc? I bring this up as a way to protect patients from anyone who may either want to...
  10. Daisymay

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes. Plus she said this whilst seemingly being completely unaware of what CG had actually said on TV re exercise and was then rather surprised when someone pointed out what CG had said. So she was jumoing to conclusions, backing CG's perspective, without knowing the facts and then, as far as I...
  11. Daisymay

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Interesting, and is there usually some kind of checking of the content of opinion pieces or can people just say what they want (within reason) with little oversight? And to people get paid to write editorials?
  12. Daisymay

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I guess this is the military exercising set up PG is talking about in Sefton Park: https://www.bemilitaryfit.com/liverpool-sefton-park
  13. Daisymay

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes and I wondered if it was a damage limitation exercise, trying to cool down the furor surrounding PG's BMJ piece because he came out of that really badly and they realised this so they tried to mitigate it a wee bit by getting him and Gerada on TV to make him seem not as extreme and...
  14. Daisymay

    UK: Physios for ME

    Absolutely and this is what was tragically missing for so many years, so many decades.
  15. Daisymay

    UK: Physios for ME

    Thank you so much for all your work on this, much appreciated. It is so good to have professionals on our side, speaking up for us, defending us.
  16. Daisymay

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you so very much for your immense labours over all these years, hugely important work, thank you x
  17. Daisymay

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    Absolutely brilliant article, thank you so much Brian Hughes for repeatedly speaking out on this !
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