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Rights and pledges covering quality of care and environment Right: ‘You have the right to be treated with a professional standard of care, by appropriately qualified and experienced staff, in a properly approved or registered organisation that meets required levels of safety and quality.’ NHS...

I wonder if the following few posts with info taken from the Handbook of the NHS Constitution could be of any help to Karen and her family? If someone has contact with them then maybe, if you think this info could be of help, you could send it on to them. The NHS Constitution lists various...

Spot on!

I'm sorry, I can see how you interpreted what I wrote as me being prejudiced against overweight people but I'm not and wasn't meaning to convey that. I was merely ( but obviously not successfully) trying to say what many people will take away from that photo as society is programmed to look...

Absolutely appalling implying that PWME are overweight and unattractive looking people ! Yet the photos of doctors and researchers in the same document are of thin, good looking, intelligent looking people who you could trust!

Excellent, so glad we made it, so grateful for all your work Dave!

Agree absolutely, hugely grateful for all your work Dave, and glad to read you've found it to be a satisfying and significant experience in your career x

Excellent Sly Saint, thanks so much for all your work and sharing this.

Yes and why not a press release from Science Media Centre I wonder!

Very well said Mithriel. My memory is that Strauss and co actually stated at the time that they went with the name CFS specifically because they didn't want to give the illness any validity as a physical disease, so it was a name to actively trivialise and done on purpose.

Perhaps these psychologists can give each other CBT to help them cope with this anxiety and also to help them to face up to the harm they've done to patients. As professionals they should have been keeping abreast of the science and questioning the validity of the psychogenic theory and they...

Congrats Adam! And thanks so much Adam and Dave for the video explaining it all, very interesting, so much work put into the guidelines, so special thanks again to all the PWME in the committee.

Yes thank you so much @Caroline Struthers, excellent!

Very sorry to hear you've had severe reactions, I hope things pick up for you x

https://www.rnz.co.nz/news/national/456598/expert-says-chronic-fatigue-syndrome-sufferers-should-be-exempt-from-covid-19-vaccination Professor Warren Tate - Expert says chronic fatigue syndrome sufferers should be exempt from Covid-19 vaccination

Me too Mithriel, this statement is UTTERLY, UTTERLY beyond appalling and doesn't bode well for anything changing. Really depressing.......and after decades of this abuse I'm not easily depressed.

Yes and not just over recent times, over decades I think the charities have really failed us.

Very grateful indeed to all the moderators and all who took part in any way with the NICE guidelines, thank you x

This completely! Over the years people new to ME often take time to realise this, that this has been done knowingly, wilfully and with seemingly no regard for patients.

Done!