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I must admit I was surprised when I saw the title as I had, rightly or wrongly, thought this thread was looking move beyond just this one case. [added - thank you for amending the title]

There is a difference between lawyers and the legal system, just as doctors are not synonymous with the health service.

Problems around the different meanings of pa. I always struggle with which term to use, most of the alternatives are inadequate.

See thread discussing Miranda Hart’s book and its fall out https://www.s4me.info/threads/miranda-hart-british-comedian.14390/

One thing about PEG feeding is maintaining oral hygiene and stopping the mouth drying out, whilst also managing oral secretions if there is any risk of aspiration, which I thought would be more important than the need to keep some level of swallowing.

As others have said in the UK it is different flue vaccines for the over and under 65s. I was only aware of this because we tried to organise that my pa and I had the vaccine at the same time so that we both could get the jabs on one visit. This means we had to wait a number of weeks until there...

I guess there is no reason why the bacterial infection triggering acute Lyme Disease could not also trigger ME/CFS, but you would presumably expect some discussion of a differential diagnosis between long term Lyme and ME/CFS. I have not read the book and have no opinion on the best way to...

Perhaps a red herring, but it is even more confusing given there is some evidence of a genetic component to anorexia.

Unfortunately it is a lie that too many people seem primed to believe.

I suspect like everything with ME there is a lot of variability. Having a very disrupted night with little or no sleep can leave me exhausted and needing to rest, but then I can also have a ‘good’ night’s of seven or eight hours undisturbed sleep and wake up feeling terrible needing several...

Don’t apologise, we need the arguments ready to defend those that do not have the skills/knowledge to objective analyse such articles. I expect well meaning friends and relatives, as we type, will be sharing this article with people with Long Covid thinking it is good news and the means to total...

The issue of supporting PEG feeding in the patient’s home was controversial thirty plus years ago, when there was lots of discussion about how it could be supported and who should pay for what, but for most patient groups it was sorted in the last century. Then it was mainly about people...

This, though very dramatic and very dangerous, is an example of ideomotor dyspraxia, where the executing and sequencing complex motor activities brakes down. I think most of us experience at some point, be it pouring the hot water for a cup of tea into the sugar bowl or putting the finished tea...

Like others in this field the author has created a totally unfalsifiable confection of ideas. This is not science.

Let’s hope it actually makes its way through Hilda’s moderation process as she seems to have been sitting on comments for the last few months.

The other thing that the release of data reveals is that not only was the research design inherently flawed but also the researchers, whether with misguided good intentions or as a conscious fraud, manipulated the data to realise their desired outcomes.

Useful that there is both the petition for US signatories and a separate list for overseas signatories.

I need to read it again, but on first glance it seems a useful response to the whole brain retraining idea.

Tina has been such a fantastic advocate, particularly for children with ME, so it good to read about her family’s journey. The younger someone is when ME strikes the more it takes away. I was in my mid thirties at onset, and though I now have had ME for nearly half my life I have had a full...

The arguments over what to call our condition has taken up a lot of energy and also been a source of splits and acrimony within the patient community. I see agreement on ME/CFS as a placeholder name that also acknowledges what we don’t know as pragmatic solution.