Search results

  1. Peter T

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    So is this also an indicator of who is holding up any action in relation to the Cochrane exercise review?
  2. Peter T

    Snakes and ladders: ME/CFS edition

    Presumably all players need to have CBT before each throw of the dice to ensure they achieve the desired score.
  3. Peter T

    Miranda Hart - British comedian

    Isn’t cooked rice prone to getting a bacteria that can be fatal to humans? So can I either suggest you confine these verbal interactions to uncooked rice or alternatively get a glass doored fridge for this purpose.
  4. Peter T

    Painkiller effectiveness for people with ME/CFS

    As always I seem to go off on a tangent. I usually take the proprietary cold and flue treatment ‘lemsip’ that contains Paracetamol, Guaifenesin and Phenylephrine hydrochloride when I am in PEM. It does not eliminate pain but takes the edge of things making sleep easier to achieve. In the poll I...
  5. Peter T

    Who is Simon Wessely?

    Rhi Belle, as far as I can tell, is a Scottish nurse working in the aesthetic (cosmetic) field. She gives an impressively thorough and detailed overview of Sir Simon’s career, which has been built on imbalanced and prejudicial approaches to such as ME/CFS and Gulf War Syndrome. As far as I am...
  6. Peter T

    Miranda Hart - British comedian

    I didn’t count them up, but there are certainly more than one untruth in this article by Clare Wilson who certainly is not building up to be a hard hitting investigative journalist.
  7. Peter T

    Could an exemplar specialist unit be set up for severely ill PwME?

    I wonder if MND (ALS) services might be worth looking at. My knowledge is very out of date, but domiciliary services for people with MND improved dramatically in the 1980s and 1990s including non oral feeding. Neurologists were more clearly the lead consultant. Historically doctors were very...
  8. Peter T

    Analyses of the economic costs and impacts of chronic illnesses like ME/CFS and Long Covid

    Although now some years ago there was some data suggesting that people treated by the UK ME specialist services went on to work less and to claim more benefits.
  9. Peter T

    Could an exemplar specialist unit be set up for severely ill PwME?

    It is worth remembering that the current UK specialist ME/CFS services were justified on the basis of many of the arguments raised above and that BACME is part of this legacy. That the current specialist services completely ignore the severe and very severe, and indeed may have added to their...
  10. Peter T

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Perhaps a red herring but this seems to me analogous to some of the arguments around assisted dying in Canada that we have looked at here. In Canada lack of quality of life, because the current services fail to support people with ME medically, practically and financially, is regarded as a valid...
  11. Peter T

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    I wonder if this obsession with a lack of specialist beds is rather yet more refusing to address the issue and part of the current attempt to pass the buck.
  12. Peter T

    Could an exemplar specialist unit be set up for severely ill PwME?

    Given at present we are talking about symptom management rather than curative treatment and that the practical skills necessary to undertake any direct intervention in the case of non oral feeding already exist in most districts, is a central specialist inpatient unit what is needed? Obviously...
  13. Peter T

    Miranda Hart - British comedian

    This article could be a puff piece for Simon Wessely: But the rest is behind a paywall. However it seems very SMC in its tone. [added - Clare Wilson has also written an article supportive of the idea of giving the unemployed weight loss injections -...
  14. Peter T

    Miranda Hart - British comedian

    i News says of ClareWilson : I gives her Twitter handle @clarewilsonmed The New Scientist says of her:
  15. Peter T

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    It is frustrating that there is so much we don’t know. However in the UK the debate about theory, about is it psychological, who is the appropriate specialist, whether to start sectioning, whether to treat by exposure/habituation, etc leaves the person with very severe ME who is also unable to...
  16. Peter T

    Covid-19 vaccines and vaccinations

    I must suggest my ‘pa’ tries to get a Covid jab, as she gets the flue one on the grounds of being my carer.
  17. Peter T

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Often public enquiries are headed up by judges and am I correct that a certain medical knight participates in the appointing of judges?
  18. Peter T

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Thank you that was the thread I was thinking of. (https://s4me.info/threads/foi-requests-to-nice-and-nhse-i-materials-pertinent-to-the-decision-by-nice-to-delay-publication-of-the-final-guideline.23023/page-56#post-542716 )
  19. Peter T

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Relatively recently there was discussion here of the Gibson Enquiry with a link to their report and noting the fact that the bulk of the evidence is no longer available?extant? I always struggle to find things and have not worked out which thread it was under. Added - here is a thread on the...
  20. Peter T

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Cochrane UK has been shut down, so I don’t know that there would be any point of contact here other than the headquarters which are still in the UK.
Back
Top Bottom