Isn’t cooked rice prone to getting a bacteria that can be fatal to humans? So can I either suggest you confine these verbal interactions to uncooked rice or alternatively get a glass doored fridge for this purpose.
As always I seem to go off on a tangent. I usually take the proprietary cold and flue treatment ‘lemsip’ that contains Paracetamol, Guaifenesin and Phenylephrine hydrochloride when I am in PEM. It does not eliminate pain but takes the edge of things making sleep easier to achieve.
In the poll I...
Rhi Belle, as far as I can tell, is a Scottish nurse working in the aesthetic (cosmetic) field. She gives an impressively thorough and detailed overview of Sir Simon’s career, which has been built on imbalanced and prejudicial approaches to such as ME/CFS and Gulf War Syndrome. As far as I am...
I didn’t count them up, but there are certainly more than one untruth in this article by Clare Wilson who certainly is not building up to be a hard hitting investigative journalist.
I wonder if MND (ALS) services might be worth looking at. My knowledge is very out of date, but domiciliary services for people with MND improved dramatically in the 1980s and 1990s including non oral feeding. Neurologists were more clearly the lead consultant. Historically doctors were very...
Although now some years ago there was some data suggesting that people treated by the UK ME specialist services went on to work less and to claim more benefits.
It is worth remembering that the current UK specialist ME/CFS services were justified on the basis of many of the arguments raised above and that BACME is part of this legacy.
That the current specialist services completely ignore the severe and very severe, and indeed may have added to their...
Perhaps a red herring but this seems to me analogous to some of the arguments around assisted dying in Canada that we have looked at here. In Canada lack of quality of life, because the current services fail to support people with ME medically, practically and financially, is regarded as a valid...
I wonder if this obsession with a lack of specialist beds is rather yet more refusing to address the issue and part of the current attempt to pass the buck.
Given at present we are talking about symptom management rather than curative treatment and that the practical skills necessary to undertake any direct intervention in the case of non oral feeding already exist in most districts, is a central specialist inpatient unit what is needed?
Obviously...
This article could be a puff piece for Simon Wessely:
But the rest is behind a paywall.
However it seems very SMC in its tone.
[added - Clare Wilson has also written an article supportive of the idea of giving the unemployed weight loss injections -...
It is frustrating that there is so much we don’t know. However in the UK the debate about theory, about is it psychological, who is the appropriate specialist, whether to start sectioning, whether to treat by exposure/habituation, etc leaves the person with very severe ME who is also unable to...
Thank you that was the thread I was thinking of. (https://s4me.info/threads/foi-requests-to-nice-and-nhse-i-materials-pertinent-to-the-decision-by-nice-to-delay-publication-of-the-final-guideline.23023/page-56#post-542716 )
Relatively recently there was discussion here of the Gibson Enquiry with a link to their report and noting the fact that the bulk of the evidence is no longer available?extant?
I always struggle to find things and have not worked out which thread it was under.
Added - here is a thread on the...
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