I remember a UK back to work scheme in place in the early 2000s. For a number of sessions I was obliged to explore the options to get me job ready with an advisor of some sort. I gave her details of what I need to do to reactivate my professional qualification, but she agreed I was not well...
I have not read any of the detail, but I suspect that this framework of ‘malingering’ where it might have a significant benefit such as avoiding military service or avoiding a criminal prosecution is also generalised to other situations where the cost of being disabled far outweighs the...
Inept makes no difference to the psychogenic true believers. I had thought Prof Crawley’s Lightening Process study would be the reductio ad absurdum of the PACE type experimental design, however instead many BPSers resolved the apparent contradictions by becoming Lightening Process defenders too.
Cochrane’s motto should be:
‘Deny, deflect, ignore’
and everyone around them seems to be enabling this. (Though to be fair Hilda Bastian has now issued some protest, once Cochrane shamelessly abandoned her.)
For me what is more important is not the historic development of the word, but how people currently feel about it. If women feel uncomfortable with or devalued by the word ‘hysterectomy’ and its potential association with the word ‘hysteria’ then that is good grounds in itself for changing the...
I have been asleep and am not sure if this is still relevant to this thread, but I will post anyway. Apologies if this is a tangent.
I think the example of black swans is relevant here. In Europe, pre the ‘discovery’ of Australia, the definition of a swan included it being white. Then suddenly...
We desperately need better descriptive data of what people diagnosed with ME/CFS or Long Covid experience.
However, though some people unambiguously describe PEM with little or no delay, it is easier to distinguish rapid fatiguability from PEM when there is a delay. What is importantly is the...
Even though current sleeping patterns (ie in Western industrial societies) are a cultural as much as a biological phenomenon. The problem is potentially the clinicians’ need for conformity rather than anything to do with individual patients’ needs.
More work for ‘the sleep police’, even though we have no idea of what causes what, or what action if any might help.
With my ME/CFS sleep disturbance my anecdotal response is that trying to police my sleep makes me more tired and the best answer is to just do what my body tells me to do. This...
Just registered that Sarah Myhill was posting a recommendation for this bleach derived miracle cure in 2024 citing Jim Humble, presumably after he had been put in prison for promoting and selling it.
Presumably the same pastor that got Donald Trump recommending it for Covid.
Sarah Myhill cites Jim Humble as it’s originator:
Edited to add ABC news quote
It would appear she is recommending it for internal consumption, albeit very diluted. It is suggested this has anti-fungal properties.
I remember some thirty years ago when over growth of candida was blamed for pretty much everything. I thought this had gone out of fashion.
I read a couple of times that the Government says people over pension age already in receipt of PIP will not be impacted. It was said that an individual’s award will only be changed when next reviewed and that those already over 66 years will not have their PIP award reviewed.
I wonder if this...
Presumably the question is that, does the model under discussion make any predictions about whether people are at higher or lower risk of catching infections, whether we respond differently if we do have a viral infection and would we expect this to change over time?
The forums contain such...
I was wondering how the BPS researchers and clinicians with an unshakable belief in ME/CFS as psychogenic and in the infallibility of of psycho behavioural interventions fit into this model?
Though I guess it is relevant to the ‘have you tried yoga?’ encounters too.
‘Margaret Williams’ has done tremendous work collecting information in general and also specificity references for biomedical research, for which she/they deserve credit. (I had not realised she was not just one person.)
However, just as with the BPS coterie’s work, press of information alone...
I don’t know if AI is a specific motivation, but I do think that the advocates of ME/CFS as a psychogenic condition and Functional Disorders more generally and proponents of psycho behavioural interventions for somatic (using the word in a purely descriptive sense) symptoms do seem to like to...
Are we seeing yet another example of failure to understand association is not causality?
Even if you could say that those with relatively high healthcare consumption experience ‘fatigue’, that tells us nothing about levels of fatigue in people who have learn that healthcare has nothing useful...
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