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Presumably here it is meant that 15 is the median age for young people with ME/CFS, even then that is confusing. If it is meant 15 is the median age for all people with ME/CFS, that makes no sense at all unless I have completely misunderstood the meaning of ‘median’.

It sounds like a quote from a surrealist poem: “metallic nano flowers heal brain cells”

This illustrates that the management of some conditions shouldn’t be left to an unknown number of medical professionals. If crowd funding is for genuine ethically approved research then it is infinitely better than individual medics pursuing unevidenced personal fads, something we see far too...

Even if we are dealing with correlation rather than causation I would still advise against over exertion if it can be avoided, just as I would advise against playing on the railway line.

Why does my heart sink when I read this?

My first thought was to wonder if this was not treating pain, but rather teaching a coping strategy?

Why not diagnose every one with functional disorders at conception, and save a lot of work? (Sarcasm alert)

Google AI recons 400 people die every year in the UK due to cold water immersion, with cold shock being a significant contributing factor.

“The whole-body cryotherapy cohort of thirty-two ME/CFS patients meeting the Fukuda criteria for ME/CFS have also had a wide range of clinical test at each time point.” The Fukuda criteria is for CFS, not ME/CFS as we now understand it.

A short piece in German Using Google Translate:

Congratulations, ME/CFS Science is undoubtedly more accurate, though I must admit, despite its ambiguity, I was attached to ME/CFS Skeptic.

Excellent news, thanks to all who raised it with them.

What I am writing now is a ‘post’. It may be confusing as on a blog what we call ‘posts’ (other than our initial posts) would be referred to as ‘comments’. So a ‘blog post’ approximately corresponds to our initial posts. The thread is the whole collection of posts under a heading, in this case...

My understanding @nataliezzz was that you wanted time out from the thread to reformulate your proposition, rather than any consensus that the thread would be inactive while you did so. Given members have varying degrees of opportunity to participate in the site it would seem unfair to expect...

Perhaps this is best discussed under the PEM thread where these points have been considered/discussed. I think someone posted the link in a comment above.

I am not yet motivated enough to read the article, but from the abstract it would seem the researchers are prejudging what is and what is not a reasonable response to the condition. Clinicians get to go home after intervention but the patients have to live with its longer term consequences...

When reading this, my first thought was is all of this evidenced and with assertions that are not evidenced would we see a consensus amongst the ME/CFS community that they seem reasonable. Is it true that psychological status at onset relates to prognosis? Do we know that acute onset with an...

Sorry I am being slow on the uptake, are you meaning the first of August, using the American convention?

An important endeavour, well done and thank you @forestglip for undertaking it.

Thank you for a prompt response, I had not expected it so soon given you are redrafting your initial post. I agree that it is clinically sensible if a doctor identifies a sleep related issue with a well established treatment that they should provide that treatment independent of whether or not...