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My GP practice texted me about two ago to arrange a flue jab, but when I got round to ringing them last Friday, they had no October slots left, and have not arranged any November clinics yet. Yesterday I got an email from the NHS saying I can book a jab online in a participating pharmacy, so I...

Thank you for pointing this out, I thought I had read the text carefully, but managed to miss the very point I was considering.

This also does not consider the possibility of subsequent deterioration. With my ME I was steadily improving over the first few years, but now with subsequent relapses my cognitive skills are much deteriorated, for example for the first fifteen years I was still able to read between four and...

Again a study where healthy controls my not be the best option, rather sedentary controls or controls with a different activity limiting health condition would clarify whether the observed effect related directly to the ME/CFS or was an indirect consequence of enforced lifestyle changes.

You have my profoundest sympathy. In general I am lucky not to have a significant pain component to my ME, though I did have a period of several years with bad ‘chostochondritis’ type pain associated with rolling PEM, which left me lying motionless for days on end in a darkened room. This has...

Loving the final sentence:

Presumably people only become obsessed with providing narratives when no one has any meaningful ideas about what is going on. Personally I would rather researchers and clinicians just admitted that we don’t know about the aetiology and have no meaningful treatments so all we can do is manage...

Changing a pre written protocol during the study, not for objective scientific reasons but rather to assuage our wish for an answer sooner is a potentially worrying precedent. I understand it is hard to wait: it was hard to wait for the new NICE ME/CFS guidelines, it was hard to wait for the...

You may be right, that sounds vaguely familiar.

My second cousin had done a lot of trial and error testing of diet with her two girls that have autism, though I have not seen her for many years and have only discussed by email with her her third daughter, who has a specific form of dyslexic that I had previously researched, in relation to...

I wish my memory was better, but I seem to recollect I had signed up for something like this some years ago, aimed at providing a geographical record of people with ME and to put potential research subjects into touch with researchers who were recruiting. At the time I seem to recollect I could...

Sorry I probably shouLd not be posting today, I am struggling with my cognitive posting. Once I had posted I realised that quoting your post didn’t make sense but I was struggling with how to clarify what I meant. Discussions on more that one thread have been veering towards the suggestion that...

This gets dangerously near the BPS arguments that if we have examples of something sometimes helping, eg some people improving at the same times as exercising, then we should be doing exercise and that it is not acceptable to leave people without any treatment (even if we do not have good...

I would say this is unfair on the 19th century, that it rather belongs in the Middle Ages.

I blame Plato and his idea of the Heaven of Forms. At a simplistic level such as the mathematical formulation a triangle as a two dimensional shape is an abstract idea that that has no existence in the real world, so for it to have meaning triangles, squares and other shapes must somehow exist...

If the detection of an unfamiliar odour is the number one trigger of psychogenic episodes, why do school trips of inner city kids in the countryside and of kids from rural schools into the city not regularly result in such episodes. My cousin used to take groups of children from very deprived...

The specialist services without an attached physician, which I think make up the larger proportion, are usually lead by therapists (OTs and some Physios) and/or to a less extent Clinical Psychologists. Such services do not offer a diagnostic service, but rather request a a consultant diagnosis...

They are used together with the Oslo Consortium and Cochrane to try to create the idea that there is international consensus on the BPS approach to ME/CFS at the same time arguing thisis a radically new approach rather than a regurgitation of a decades old view point that has failed both...

“11. We also know that recovery is possible, and question why recovered patients were not included in the genetic analysis. Maybe this is a question to be added in further research. It would be interesting to know whether genetic, environmental, or psychological factors influencing the...

Waiting lists are not necessarily meaningful. I remember back in the 1990s I was encouraged to put patients on waiting lists as there was potentially funding to bring waiting lists down, then government policy change and waiting lists were seen as a bad thing so the waiting lists were quietly...