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List of histamine liberating and low histamine foods that I was advised to refer to. https://www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf Edited to amend link.

I've been assessed recently by a doctor at a London hospital for my bladder problems which worsened in 2017. I've had repeated bouts of UTI symptoms but with negative culture. Also problems with hesitation, slow bladder emptying, frequent urination etc The doctor in London thinks it is...

I used to have very painful periods, to the extent that I had to take time off work. I was told by my GP that the problem would resolve after I had children. More recently I saw a GP as I thought (correctly as it turned out) that I have POTS. He told me that my symptoms were a result of my...

There is a lot of expertise in the group and useful documents. Worth joining if you do FB and are interested in HRM. I learnt a lot from the old group.

Interesting programme on iPlayer. Delves back into history of anti-vax, vaccine "hesitancy", Wakefield etc. Mainly focuses on UK and US. Suspicion of Pharma and their financial links with the establishment. Impact of social media. Worth a watch from a social history point of view if...

Yes it is dreadful @Trish I've already complained about this lot to trading standards a few years ago. Believe it or not their claims were even worse. At one point they they even claimed links with the local NHS ME clinic citing names of the NHS therapists. That was removed after a complaint...

Unfortunately we have our own offshoot of the LP here in Suffolk. They claim http://www.thebodymindprogramme.com/questions-answers.htm They also claim to "help" people with progressive MS With testimonials at the end of the page. http://www.thebodymindprogramme.com/multiple-sclerosis.html...

@Marky I wouldn't discount BB totally. My RHR is mostly in the low 60's again now, which is where it was before the POTS worsened. The tachycardia has been blunted. I'm on a very low dose of bisoprolol. It's probably dropped my RHR by about 7 - 8 BPM. You may wish to discuss with your doctor if...

I agree totally with @Snowdrop . In my experience the anxiety is a consequence of the adrenaline surges not the cause. My view is that it is not surprising that I feel wired, anxious, reduced emotional resilience, with enough adrenaline racing round my system to escape from a sabre toothed...

@Marky i experienced something similar when my OI/POTS worsened. I got awful adrenaline surges which made me tachycardic, wired, jittery and with greatly reduced emotional resilience. They were most unpleasant and exhausting and lasted for hours with the after effects for days. They seemed to...

Thanks @ScottTriGuy Have subscribed and looking forward to listening. @sb4 found the podcast on two podcatchers, Google podcatcher is probably the simplest and has no ads. ETA Podbean mentioned above is an android podcatcher.

There's some good information on the website - CUTIC, about the Kass threshold for identifying a UTI and the limitations. The Kass threshold was actually based on a small number of pregnant women with kidney infections then extrapolated to UTIs. Kass himself noted that people with UTIs tend to...

I echo what has been said about Benefits and Work. Their very detailed guides are well worth the subscription. The guides give advice on how to answer every question and what information the DWP is actually after....not always clear from the question. I also send in all my medical reports even...

Before I took beta blockers I had tachycardia both when lying down and when sitting / standing. But I always had it when sitting / standing - well I still do, but not so severely. The tachycardia when lying down appeared to be a result of adrenaline surges. Often the stimuli was not apparent...

@Wits_End I subscribe to the B&W email. I'm on my phone atm so can't check but I do recall that the forum was mentioned. They were very pleased that so many had volunteered as moderators. So I suspect that the forum has been suspended and will be up and running again when moderation is sorted

@Sly Saint the clinic is part of the therapy led Norfolk and Suffolk Service...They had been criticized for not offering geographical coverage in North Norfolk, hence Aylesham. There is very little to say that is good about the Provider ECCH, or indeed about Gt Yarmouth and Waveney CCG...

A big problem with health professionals I've found is that because there is no evidence base they generalize: between the effect of activity and exercise on PwME and people with other conditions and people who are healthy between other patient groups and PwME with regard to toleration of dose...

@JohnTheJack I find a sleep routine very helpful. Getting ready for bed from 8:30pm. Take some zopiclone. Lie down by 9:30 pm. Watch a bit of undemanding TV on my tablet. Lights out by 10pm, earlier if possible. Listen to podcast or Italian vocabulary to send me to sleep. Usually asleep within...

@Trish The worsening of my M.E. has been due to both a gradual decline and more significant deteriorations as a result of individual relapses from which I haven't recovered to my previous level of function. Very frustrating. I don't feel I have any more energy since using BB. But I do think...

Eeek, yes it should be 400 minutes!! Thanks for pointing out the error, will amend. With regard to food it can be a sensitivity to a particular food, eg fermented foods, or those with high histamines. Some people report significant responses on the HRM Facebook group.