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No unfortunately. I tried to sign up, but couldn't figure out how to participate. But thought it sounded very interesting, so will have a listen during the next days. How about you?

The talks from this conference are now available https://www.ru.nl/en/about-us/news/postviral-ethics-rcps-pcnn

I thought the translation was good. Good flow and it reads as it's written in Norwegian, not a translation from English. Well done!

at least people are informed about the harms of smoking. But that took quite a long battle as well.

Glad to see this kind of paper out. And I assume this is a problem everywhere, as health care workers are so exposed. The paper suggests several measures to improve matters for HCW with LC, but it seems protecting them from the infection generating the illness is not among them.

Thought this could be of interest to the forum. The paper is paywalled except for the abstract: Sleep loss dysregulates cellular metabolism and energy homeostasis. Highly metabolically active cells, such as neurons, enter a catabolic state during periods of sleep loss, which consequently...

Written by GP and LC sufferer Elke Hausmann Quote: Thinking about patients with LC and ME, if we could identify them as patients with ‘premature frailty’, and did an in depth review of an individual, we would most likely be able to advise them in ways in which they can reduce their risk of...

One of the authors of the paper, Cervantée Wild has a summary on Bluesky: New paper out unpacking the idea of 'recovery' among patients with Long Covid and those admitted to ICU & differences in baselines, waymarkers, pathways of experiences, & other people's responses to their illness For ICU...

Journal: Health Expectations ABSTRACT Introduction Interpretations of ‘recovery’ from illness are complex and influenced by many factors, not least patient expectations and experiences. This paper examines meanings of ‘recovery’, and how it is strived towards, drawing on the example of...

A Danish magazine on health politics has today a critical article about this decision. I'm pleasantly surprised by the detailed knowledge the journalist seems to have of the situation for Danish ME patients and what they are up against. She also mentions NICE guidelines. Sundhedspolitisk...

Thanks for making a thread on this, @Jaybee00 Unfortunately I'm not able to attend, but I'm sure we'll hear about it if exciting news are shared at the conference. The first day is for health care workers and not to be recorded. As you say the evening conference next day is for everyone and...

ME félag Íslands, the Icelandic ME Association has uploaded a talk in English by professor Ola D. Saugstad. Haven't watched it myself yet, but Saugstad is always worth listening to.

There is now a link to the email in the article :) https://melivet.com/wp-content/uploads/2025/04/email.pdf

The Danish ME Association has shared some promising news via their Facebook page. The Danish Health Authority will from now work to strengthen efforts for ME/CFS patients. The work will be based on the two knowledge reports from Defactum and Implement respectively, as well as the latest...

Nina has updated her article with the email. https://melivet.com/2025/04/08/a-small-step-in-new-zealand/

Thanks to Nina E. Steinkopf the Lightning Process has now been removed as a topic endorsed by the Royal New Zealand College of General Practitioners. https://melivet.com/2025/04/08/a-small-step-in-new-zealand/

Sorry to hear that @Jaybee00 but thank you for sharing your experience.

I have a friend who has had ME for over 30 years and just started Tirzepatide (Mounjaro) 12 weeks ago. She says ME symptoms as brain fog and sensitivity for light and sound has improved a lot and she can do much more than usual. Would love to hear your thoughts on this.

Journal of Health Psychology: Improving myalgic encephalomyelitis population sampling: Applying an online respondent-driven method to address biases in G93.3 register data - Kielland et al Abstract With widespread late- and under-diagnosing, health register code G93.3 data cannot offer an...

Thank you @mango for sharing these news. This sounds promising and I hope NICE's guidelines will play an important part.