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  1. Kalliope

    General thread on functional disorders in Denmark

    Thank you for providing some quotes from the text. I don't know of the details regarding functional disorders and codes, but thought it might be of interest to know that Peter la Cour has been Leader of Knowledge Center for functional diseases in Copenhagen from 2013 - 2018. Here's his CV in...
  2. Kalliope

    General thread on functional disorders in Denmark

    Psychologist Peter la Cour, who for a long time has been critical to the term functional disorders and written well informed opinion pieces about ME/CFS has written a response to the celebratory article about Per Fink's career. I hope the automatic translation is understandable because the...
  3. Kalliope

    ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

    New video from the conference with professor Fluge's talk "Biological treatment strategies". He speaks in Norwegian, but there are English subtitles.
  4. Kalliope

    Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital

    The trial will cost approximately 26 million NOK (2568066 USD, 2200842 EUR, 1870892 GBP) in total, so there's still a long way to go, but 4 million NOK is a start.
  5. Kalliope

    Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital

    The Norwegian ME Association has already put aside 4 million NOK in order to support this study and is now starting a campaign to raise more money in order to ensure its funding. https://www.me-foreningen.no/me-fondet-gir-fire-millioner-til-daratumumab-studie-pa-haukeland/
  6. Kalliope

    Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital

    The ME/CFS research team at Haukeland University Hospital in Bergen, Norway (Fluge, Mella, Rekeland, Sørland etc) is recruiting 66 participants for a new placebo-controlled trial on Daratumumab as a potential treatment for ME/CFS. The duration for participants is 72 weeks. The participants will...
  7. Kalliope

    News from Scandinavia

    The public broadcaster NRK has a long article about severe ME patient Kamilla who is fighting for getting enough care at home. There can be months between when she gets to have her teeth brushed. You are not supposed to move anyone under 50 years into nursing homes against their will. But not...
  8. Kalliope

    News from Scandinavia

    This is such a wonderful series which I loved, apart from just that one thing. But this is a totally normal way to talk about ME and ME patients in Norway. I don't know if comedians are to blame, as they are just picking up on common prejudice and who are allowed to be mocked which today is...
  9. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Paul Garner is interviewed in an article about doctors and patient activists in the journal for the Finnish Medical Association. google translation: In the teeth of activists quote: What to do if you find yourself caught in the teeth of activism? Garner contacted the university and the...
  10. Kalliope

    General thread on functional disorders in Denmark

    Per Fink is stepping down according to a paywalled article in the medical newspaper Dagens Medicin. He is quoted saying he was targeted because he stuck to professionalism. He recently resigned as Chief Physician for Functional Disorders at Aarhus University Hospital.
  11. Kalliope

    Brief Outpatient Rehabilitation Program for Post-COVID-19 Condition, Nerli et al, 2024 - with comment from T. Chalder

    I think he is Australian. He has a PhD in biostatistics from Harvard and is now working at the Norwegian Institute for Public Health (yes, that institute! With Flottorp and co..). He has written several superb opinion pieces and given several interviews on Long Covid and has published research...
  12. Kalliope

    History of COVID-19 infection is associated with disrupted cardiovascular stress response habituation in physically active people, Mahon, Hughes,,2025

    Journal: International Journal of of Psychophysiology Abstract Objective Coronavirus disease 2019 (COVID-19) is characterized by multiple effects on cardiovascular and autonomic functioning. As moment-to-moment cardiovascular function is highly susceptible to mental stress, this has spurred...
  13. Kalliope

    ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

    Today is the conference for health care workers. One of the speakers, professor Brian Hughes has shared some pictures and updates on Bluesky https://bsky.app/profile/bmhughes.bsky.social/post/3lokrwvssas2r
  14. Kalliope

    Prevalence of Persistent Cardiovascular and Pulmonary Abnormalities on PET/MRI and DECT Imaging in Long COVID Patients, 2025, Trivieri, Putrino+

    Medical Express: Long COVID may cause long-term changes in heart and lungs, leading to cardiac and pulmonary diseases Quote: "This study brings us closer to understanding how SARS-CoV-2 affects the heart and lungs over time. We believe long COVID results in an inflammatory response that may...
  15. Kalliope

    Crowdfunding for David Tuller during April 2025

    98% :) https://crowdfund.berkeley.edu/project/46120
  16. Kalliope

    Crowdfunding for David Tuller during April 2025

    Someone just gave a donation of 3 000 dollars. Thank you "Anonymous"! 97% of target is reached
  17. Kalliope

    "Doctors as Patients" documentary Anil van der Zee

    This was stunning. Very well done by everyone who participated. It's deeply moving and thought provoking and I hope it will reach far and wide. Thank you so much for making this!
  18. Kalliope

    Identification of soluble biomarkers that associate with distinct manifestations of long COVID, 2025, Gao, Buggert, Peluso et al

    Press release from Karolinska Institutet: Long COVID biomarkers found - associated with respiratory problems Quote: “The proteins were mainly found in patients with Long COVID and severe respiratory problems,” says Dr Buggert. “This is a biomarker pattern that we know to be linked to...
  19. Kalliope

    Identification of soluble biomarkers that associate with distinct manifestations of long COVID, 2025, Gao, Buggert, Peluso et al

    The paper has now been published https://www.nature.com/articles/s41590-025-02135-5
  20. Kalliope

    Brief Outpatient Rehabilitation Program for Post-COVID-19 Condition, Nerli et al, 2024 - with comment from T. Chalder

    There are some new comments to the paper. one by Richard White and one by Mark Vink and Friso Vink-Niese There's also a response from the authors disagreeing with the critical comments. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2828267
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