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From The Star, Malaysia's biggest news site in English Scientists uncover genetic link to chronic fatigue syndrome

Conclusions Substantial increases were observed in primary healthcare consultations in 2024 compared to pre-pandemic levels. Many of the conditions with the greatest excess are associated with post-acute COVID-19 sequelae. The findings suggest ongoing population-level health impacts...

Adding some more quotes: Fatigue Fatigue is one of the most well-documented post-acute sequelae of COVID-19 (15,53). A systematic review of 50 controlled studies including over 14 million participants found that non- hospitalized COVID-19 patients had significantly increased risks of fatigue...

Another quote from the paper: Clinical perspectives and diagnostic coding in Norway Despite growing international recognition of PASC as a multi-organ disorder with serious functional consequences, prevailing perspectives within the Norwegian healthcare system may contribute to its...

How refreshing to read something this honest. (From the "Background" section of the paper): The COVID-19 pandemic has altered global healthcare utilization patterns, with impacts extending far beyond the acute phase of infection. Post-acute sequelae of COVID-19 (PASC) is now recognized as a...

Preprint, see post #18 for peer-reviewed version. ---------------- Excess primary healthcare consultations in Norway in 2024 compared to pre-COVID-19-pandemic baseline trends Abstract Background The risk of post-acute sequelae of COVID-19 is estimated at 3–6% per infection in 2024. Our previous...

I often feel I have fever over 38 during PEM. Sometimes there is a bit fever. Most often not, even though it feels like fever the temperature is often 36.5. I had 38 degrees for a couple of years when I first got sick. When I had Covid I felt I had fever, but the temperature varied from 38.5...

Journal: BMC Infectious Diseases Abstract Background Persistent symptoms and complications reported by many patients for more than four weeks after contracting coronavirus disease 2019 (COVID-19) are referred to as post-COVID-19 syndrome. These persistent symptoms can occur in individuals with...

Yes, I think you are right. The article continues with: – Hopefully, more researchers will also be attracted to this field, preferably specialists in specific genes and mechanisms. In Bergen and Oslo, immune-directed treatment is currently being investigated as a possibility, based on a...

The second article on DecodeME is from a large tabloid newspaper VG who has interviewed professor Karl Johan Tronstad (part of the Fluge/Mella team), professor Vegard Bruun Wyller (Norway's Wessely) and Trude Schei from the Norwegian ME Association. The article is paywalled, but here are links...

Finally some coverage from Norway as well! First one is from the research news site forskning.no with journalist Ingrid Spilde who has written several great and thorough ME research articles before as well. Gigantisk studie så på genene til ME-syke - dette fant de Google translation and...

One of the rapid responses is from an Alexis J Gilbert - Consultant in Health Protection, medically retired due to Severe Long Covid and M.E. quote: As a public health consultant forced into medical retirement by Long Covid and M.E., I commend Aretouli et al. for their comprehensive review of...

Abstract Roughly one in five adults who meet criteria for long covid present with objective or subjective cognitive dysfunction or elevated symptoms of depression or anxiety lasting ≥12 weeks from an acute covid illness. These neuropsychiatric sequelae have considerable functional consequences...

Article from CIDRAP today: COVID reinfection may raise risk of persistent symptoms by 35% This quote about a sub analysis from the study seems important. I'm curious about how well vaccinations protect against Long Covid as infections are accumulating..

DecodeME is mentioned in an article from Denmark about a patient association for functional disorders being invited to take part in the development of new guidelines for ME/CFS. 849 ME patients and carers have signed a letter in protest of this. More in this thread.

The Danish news journal on health and politics, Sundhedspolitisk Tidsskrift, writes today that 849 ME-patients and carers have signed a protest letter to the Danish Health Authority. The Danish Health Authority invited the Patient Association for Functional Disorders to participate as patient...

Yes, but perhaps the title was made by someone who didn't read the article.

The Swedish tabloid newspaper Aftonbladet has a paywalled article titled "New study can reveal who will become sufferers of ME" https://www.aftonbladet.se/halsa/a/pPwlbE/me-cfs-studie-kan-visa-vem-som-drabbas-kan-ge-nya-lakemedel

A big newspaper in Denmark, Politiken, has a paywalled article about the study titled translated into English "Surprising breakthrough in severe illness: "We now know that a person's genetics can tip the balance"...

Substack article by Amanda ("Illustrated interrupted" on Bluesky): Today is Severe ME Awareness Day quote: I don’t like thinking about the most severe end of the ME spectrum. Honestly, it terrifies me more than death. https://substack.com/home/post/p-170426786