I don't think we have a thread for this conference that the Swedish ME Association (RME) and the Swedish Covid Association organised two weeks ago. Talks from the conference are now available.
Introduction - Treating ME/CFS and Long Covid - Options Ahead
Speakers: Kerstin Heiling, The RME...
It would help. They are now asking for anyone and as many as possible to sign.
Sorry if petition was a wrong word. I thought of it as a petition for support of the letter.
ETA: I see how it could be misunderstood and have edited the first post to make it clearer.
I belive there are several members here who'd like to add their name in support of this letter from scientists and professionals to WHO urging universal use of respirators in healthcare. Everyone who supports this can sign, you don't have to be a professional to add your name.
Description
In...
I think that sounds quite possible. Wyller says the immune system is influenced by stress, so as long as the answer is some kind of CBT, he seems happy enough with the question.
In one of the TV programmes he was in the other day, he said straight out that his approach is most cost effective...
Just adding the conclusion where it says something about "functional brain alterations": One of the authors, Wyller, is pushing "Pain Reprocessing Therapy" hard these days and recently got a whole day in the spotlight at the Norwegian broadcaster via radio, the evening news and a news debate...
Summary
Background
The pathophysiology of post-infective fatigue syndromes (PIFS), including Long COVID, is unknown. This systematic review and meta-analysis aimed to investigate if PIFS is associated with persistent immune activation.
Methods
PubMed, EMBASE, and Web of Science were searched for...
I hope this is a suitable thread as Tuller himself shared a link to his new blog post on 10 years of Trial By Error in a fundraising email.
Some Thoughts on Ten Years of Trial By Error
Ten years ago this month, I launched Trial By Error with a 15,000-word investigation of the misbegotten and...
A new blog post from Naomi Whittingham this week. Beautifully written as always and ends with an impressive poem. She's such a good writer!
On Gratitude and Grief
Through many years living with severe illness, I’ve come to know a lot about emotions. From the sorrow and regret of a life lived...
Highlights
• HIV/AIDS and COVID-19 are preventable infectious diseases with chronic systemic impacts including immune system dysfunction.
• Chronic inflammation, immune exhaustion, and accelerated biological aging are shared hallmarks of HIVI/AIDS and Long COVID/PASC.
• Tissue reservoir...
Per Fink has his own take on things as usual and says in this Danish article about the study:
"It's exiting if a biomarker for CFS/ME and thus for a functional disorder has been found. But it will require more well-conducted studies to be able to conclude this".
Sundhedspolitisk Tidsskrift Ny...
George Monbiot has a great thread on this on Bluesky today
Quote:
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis*...
Cidrap: COVID-19 infection associated with increased risk new-onset vascular dementia in older adults
quote:
“The observed associations may reflect a broader impact of respiratory conditions on cognitive health rather than a COVID-19–specific effect,” the authors wrote. “Given the substantial...
Danilo Buonseno has written a comment about the study for the Lancet
Long COVID is here to stay - even in children
Quote:
The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral...
The debate on ME, Per Fink and functional disorders has continued in the journal on health politics.
Casper Frimodt has been bed bound for five years with severe ME and says if Per Fink's treatment had worked, patients would have been delighted to receive it
Danish version l Google translation...
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