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Has the ME APPG made any kind of statement on the DHSC delivery plan or was this avoided by the cunning timing of the DHSC delivery plan publication?

Yes I agree. It’s about the message you think most Important to send and that should imo have been the let down of the community, draw a line , have standards. . The Ashley D carrot-quote about possibly more in the future is Unacceptable given how long this has been going on and the harm as...

To be fair this article has been updated, changing Dr s quote a lot as well as strengthening objections of the patient...

https://www.bbc.co.uk/news/articles/cn5k54qz3lyo?app-referrer=deep-link

But both these illnesses charities led campaigns afaiu. One of the post office justice fighters made the comment "unless they get headlines against them, governments do nothing and it doesn't matter what colour they are, they all they are exactly the same" to radio Scotland just before the Dr...

I hope you don’t mind but I screenshotted your whole conversation on Facebook because it was a challenge and response to challenge that I feel reveals a lot about Dr Charles Shepherds thinking about the plan and what happens next - in my view there's an insanity position of keeping on keeping...

So is it the situation that the ongoing task force groups that this plan has established means charities are going to continue attending those as their going forward actions & being polite so as to maintain a seat table et cetera, rather than being prepared to come out head on and stay the...

Sounded like waffle to avoid the subject, absolutely not what patients needed on this rare media opportunity about an important report. Afaics on my first listen , Neither Charles nor Janet critiqued the report in a meaningful way , even after making allowance for them speaking regarding the...

If the severe ME e module is being kept to HCPs only this need FOI afaic

Sajid Javid personally intervened to give long covid an extra £20m RFF . He could have done the same at the that same time for us. He's now saying that there should have been ring fence funding. How many were actually calling for significant RFF and were the blocks to that coming from the...

Apart from extreme let down, this story is hardly newsworthy. The fact that the historical context - that the delivery plan was supposed to be the thing that delivered what the 23 years ago 2002 chief medical officers report failed to implement and that this was needed to bring justice &...

I think we need to have at least some services that serve severe me and can build expertise in the country. . Are there any other conditions with this potential and spectrum of severity That are just left to GP’s? I think dementia might be the only one. I think severe ME needs more complex...

What about the 25% who are severe and more complex moderate cases? We aren’t just talking about the needs of the mild affected or those newly ill who just need the ABC of management spelled out. And even then, there are medical needs in all , for example in the whole of east Anglia, there is...

Yes I thought it was just a very severe, I presumed some type of inpatient provision which they've only had 16 years? to come up with, since the closure of Queens. they're doing the same old thing, where they talk about the mild- moderate as separate and that will get an app or just GPs...

I don’t think there is any mistake in this choreographed stitch up. I don’t think the leaving it until the last day of parliament was a coincidence. I don’t think putting chronic fatigue syndrome as the big header was just a mistake, nor the minimising of severe m.e to housebound and unable to...

I disagree, I think severe and complex cases benefit from drs building up expertise and specialising. Tragic cases deserve support in off label medicine and I also think m,e clinics should be offering OI & POTS diagnosis and care. Eg my m.e is associated with an inability to relax my muscles...

Radio 4 interview starts off at how Chronic Fatigue syndrome had been thought to be psychological and acceptance has been slow, but government hopes to change that. They said all that 23 *** years ago. They are literally resurrecting chronic fatigue syndrome isn't psychological and needs to be...

https://www.pulsetoday.co.uk/news/clinical-areas/mental-health-pain-and-addiction/gps-to-support-delivery-of-me-cfs-care-under-new-nhs-plan/